The Metabolic Support UK organization funds research and provides information to families affected by metabolic disorders.

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

The National Urea Cycle Disorders Foundation provides information and resources to those affected by urea cycle disorder (UCD).

The website offers families and professionals information, resources, support and advocacy assistance.

The Organic Acidemia Association funds research and provides support for individuals affected by organic acidemia metabolic disorders.