The Cure Mito Foundation's mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures.

"A comprehensive diet-management system for PKU with phe/pro/exchange and calorie values for more than 7,000 foods. Easily record, chart, and export your intake and blood levels."

The Metabolic Support UK organization funds research and provides information to families affected by metabolic disorders.

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

The NPKUA provides information and support to adults and families affected by phenylketonuria, advocates for the reimbursement of medical foods, and invests in targeted and peer-reviewed research. Find helpful resources, educational information, news and events, and how you can take get involved.

The National Urea Cycle Disorders Foundation provides information and resources to those affected by urea cycle disorder (UCD).

The website offers families and professionals information, resources, support and advocacy assistance.

The Organic Acidemia Association funds research and provides support for individuals affected by organic acidemia metabolic disorders.

Provides enrollment services for applicants who are aging or with physical disabilities applying for Aging, Attendant Care, COMMCARE, Independence, and the OBRA Waivers or the Act 150 Attendant Care Program.

A non-profit organization supporting collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for people with hypermobility spectrum disorders (HSD) and Ehlers-Danlos syndromes (EDS).