Division of Neurology Patient Stories

Our pediatric neurologists have advanced training and experience in treating the full spectrum of neurological disorders in children and adolescents, which means the best possible care for your child.

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215-590-1771

Patient story

Bridget’s Story: Chiari Brain Surgery

Thanks to brain surgery at CHOP, Bridget went from experiencing daily pain caused by pulsing headaches to being moved up to varsity lacrosse, all in one year.

Patient story

Weston’s Story: Management of 4H Leukodystrophy

It took many doctor visits and diagnostic tests before a genetic test came back positive for leukodystrophy when Weston was 3 years old.

Patient story

Broc’s Story: High-intensity Focused Ultrasound to Treat Seizures

Broc was 7 years old when he had his first tonic-clonic seizure (also known as a grand mal). He lost consciousness and had violent muscle contractions. It was extremely frightening for his parents, Heather and Dave, to see.

Patient story

Elke’s Story: Myelin Oligodendrocyte Glycoprotein Antibody Disease

At age 10, Elke was afflicted by MOGAD, a serious illness that started with acute and severe paralysis and an inability to speak.

Patient story

Natalie’s Story: Novel Treatment of Aicardi Goutieres Syndrome

Natalie could walk, talk, and was ahead of all milestones for her age. Then, when she was 18 months old, her parents, Nicole and Patrick, noticed her lifting her big toes off the ground when she walked, as though she had a splinter or cut on the bottom of her foot.