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Craniofacial Program Patient Stories

Every person on your child’s team has the same goal: to see your child thrive. We provide medical care, emotional support and much more. Each team member has extensive experience in treating children with visible differences.

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Patient story

Goldenhar Syndrome & Von Willebrand Syndrome: Aidan's Story

Aidan was born with Goldenhar syndrome and Von Willebrand syndrome, two rare genetic conditions that need expert medical management. He receives care from The Children's Hospital of Philadelphia at CHOP Specialty Care Centers in New Jersey.

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