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Craniofacial Program Patient Stories

Every person on your child’s team has the same goal: to see your child thrive. We provide medical care, emotional support and much more. Each team member has extensive experience in treating children with visible differences.

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Shaikha Painting
Patient story

Goldenhar Syndrome: Shaikha’s Story

In the seventeen years of Shaikha’s life, she has spent an exceptional amount of time undergoing medical procedures. “By the age of 11, I already had 19 surgeries,” she explains. “I've had 25 surgeries in total.”

Lilliana smiling while riding a swing
Patient story

A New Ear: Lilliana’s Story

Lilliana was born with only one ear due to hemifacial microsomia, a condition in which the tissues on one side of the face are underdeveloped. Doctors at CHOP gave Lilliana a new ear.

Patient story

Goldenhar Syndrome: Emily’s Story

Born with tetralogy of Fallot and Goldenhar syndrome, Emily has endured dozens of surgeries in the past 14 years, and her mission is to teach kindness and acceptance.

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