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Craniofacial Program Patient Stories

Every person on your child’s team has the same goal: to see your child thrive. We provide medical care, emotional support and much more. Each team member has extensive experience in treating children with visible differences.

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Lilliana smiling while riding a swing
Patient story

A New Ear: Lilliana’s Story

Lilliana was born with only one ear due to hemifacial microsomia, a condition in which the tissues on one side of the face are underdeveloped. Doctors at CHOP gave Lilliana a new ear.

Patient story

Goldenhar Syndrome: Emily’s Story

Born with tetralogy of Fallot and Goldenhar syndrome, Emily has endured dozens of surgeries in the past 14 years, and her mission is to teach kindness and acceptance.

Patient story

Goldenhar Syndrome & Von Willebrand Syndrome: Aidan's Story

Aidan was born with Goldenhar syndrome and Von Willebrand syndrome, two rare genetic conditions that need expert medical management. He receives care from The Children's Hospital of Philadelphia at CHOP Specialty Care Centers in New Jersey.

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