Research Studies
Autism Integrated Care Program Research Studies
Find research studies available to children cared for by the Autism Integrated Care Program team.
Eligible age
Approach Avoidance Model of Repetitive Behaviors
The goal of this research study is to learn about experiences with repetitive behaviors from autistic teens and their families. In order to learn about your experiences with repetitive behaviors, you will be invited to complete a set of online questionnaires about your (or your teen's) experiences. The goal of this study is to promote advocacy and transparency for autistic teens' lived experiences. A small subset of teens may also be asked to complete a brain MRI and additional behavioral assessments, if they are interested. Participating in the MRI and further behavioral assessments is voluntary and is not required to complete the online surveys.
BUFFET-Snack: Food Selectivity Study for Autistic Youth
The Building Up Food Flexibility and Exposure Treatment (BUFFET) program helps autistic children 8-12 years old to be more flexible with trying new or non-preferred foods. BUFFET-Snack is a brief version of this treatment program. The goal of this study is to see if families can complete BUFFET-Snack and if they like it. BUFFET-Snack is a cognitive behavioral therapy. It will be a good fit for children who can communicate with full sentences and have some back-and-forth conversation skills.
Developing a Romantic Relationships Program for Autistic Young Adults with Intellectual Disability
We are making a program to teach autistic young adults with intellectual disability (ID) about romantic relationships. We are partnering with:
- Young adults (18+) who have autism and mild/moderate intellectual disability
- Parents and guardians of young adults (18+) who have autism and mild/moderate intellectual disability
Multimodal Imaging in Autism
The purpose of this study is to understand how children's brains process sounds and language. Children with Autism Spectrum Disorder (ASD), Intellectual and Developmental Delay (IDD), or Developmental Language Disorder (DLD) often have trouble understanding sounds that are too close together compared to Typically Developing Controls (children without ASD, IDD, or DLD). Fast changes in speech can be hard for children. This may be awkward during conversations and difficult in social situations. This research will see if trouble with processing sounds contributes to language difficulties in children with ASD, IDD, and/or DLD.
Pathways to ASD Diagnosis
The purpose of the study is to learn more about the experience of caregivers who have a child diagnosed with autism. We also want to better understand what is working well in healthcare in the US. This study is open to primary caregivers of a child (aged 3-17) who has been diagnosed with autism spectrum disorder in the last year. Participants must have immigrated to the US and identify as Hispanic or Latinx. Study staff will interview participants about their experiences as a caregiver of an autistic child. This one-time interview will last 60-90 minutes in Spanish or English.
PEDSnet Research Prioritization Strategy
PEDSnet and DBPNet seek youth (13-24), parents, and clinicians/scientists for the Intellectual and Developmental Disabilities (IDD) Research Prioritization Study. The goal is to develop a prioritized list of research questions that will immediately impact patient health outcomes, focusing on children with IDD.
Participants will answer open-ended questions on Viva Engage, a Microsoft platform, to share their thoughts and opinions. The study is entirely online, and parents and youth will be compensated for their time. To participate or learn more, complete our eligibility screener.
Ready to CONNECT: Conversation and Language in Teens
Conversations are important for getting along in everyday life, but we don't really know what makes them successful. This study aims to find out what factors help make conversations better. By looking at different talking styles and techniques, we want to learn how to have more effective and enjoyable conversations. We are seeking volunteers between 12-15 years old both with and without autism and their families to partner with us.
SOAR Studying Outcomes of Autistic Individuals Transitioning to Adulthood
Children's Hospital of Philadelphia and Childrens National Hospital are studying daily living skills like cooking, cleaning, and money management and their impact on quality of life for autistic individuals. This study is funded by the National Institutes of Health (NIH) and is led by Ben Yerys, PhD and Lauren Kenworthy, PhD.
Social Coordination
The Social Coordination study aims to explore how people express themselves through facial expressions and body movements. We need help from adolescents ages 12 to 17 who have an Autism diagnosis or those who may be seeking a professional Autism evaluation to better understand behaviors they experience. We also need help from children and adolescents ages 8-17 who are typically developing. By utilizing new technology, researchers hope to identify differences in these expressions and movements. This information could lead to better methods for recognizing and understanding Autism and other behavioral conditions.