PEDSnet Research Prioritization Strategy

PEDSnet Research Prioritization Strategy

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This study is now recruiting. Learn more about enrolling here.

Description

PEDSnet and DBPNet seek youth (13-24), parents, and clinicians/scientists for the Intellectual and Developmental Disabilities (IDD) Research Prioritization Study. The goal is to develop a prioritized list of research questions that will immediately impact patient health outcomes, focusing on children with IDD.
Participants will answer open-ended questions on Viva Engage, a Microsoft platform, to share their thoughts and opinions. The study is entirely online, and parents and youth will be compensated for their time. To participate or learn more, complete our eligibility screener.

Eligibility and criteria
IRB Number:
16-012878
Eligible age range:
13 years - 100 years
Clinical trial phase:
N/A
Official title:
PEDSnet Stakeholder-informed Patient-Centered Research Prioritization: Standard Process, Procedures, and Tools

Related specialties
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We need families like you

Your time and participation make a difference in supporting the work of the Research Institute and children in our community. Learn more about opportunities to participate in our research.