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Research Studies

Autism Integrated Care Program Research Studies

Find research studies available to children cared for by the Autism Integrated Care Program team.

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Eligible age

Adolescent Communication of Emotion Study (ACES)

The purpose of this study is to understand how children and adolescents respond to different emotions and social situations.This study is opento childrenbetween the ages of 12-17 years old. We arelooking for typically developing children as well as children who arediagnosed withautism spectrum disorder (ASD), anxiety or depression.Participation would consist ofup to two in-person visitsto the Center for Autism Researchat CHOP to complete brief cognitive testing and participate in activities and interact with research staff.

Phase: N/A

Actively recruiting: Yes

Category: Children, Healthy Controls

Approach Avoidance Model of Repetitive Behaviors

The goal of this research study is to learn about experiences with repetitive behaviors from autistic teens and their families. In order to learn about your experiences with repetitive behaviors, you will be invited to complete a set of online questionnaires about your (or your teen's) experiences. The goal of this study is to promote advocacy and transparency for autistic teens' lived experiences. A small subset of teens may also be asked to complete a brain MRI and additional behavioral assessments, if they are interested. Participating in the MRI and further behavioral assessments is voluntary and is not required to complete the online surveys.

Phase: N/A

Actively recruiting: Yes

Category: Children, Remote (Online / Phone Call Only) Studies

Autism Quality of Life

The purpose of this research study is to test how well a common, standardized quality of life tool measures quality of life among children on the autism spectrum who are minimally verbal or have an intellectual disability. Parents/ caregivers of autistic children (ages 5-17) who are minimally verbal or have an intellectual disability are eligible to participate in the study.

About 35% of children on the autism spectrum also have an intellectual disability, so it is important to include families with autistic children who are minimally verbal and/or have intellectual disability in research.

Phase: N/A

Actively recruiting: No

Category: Adults, Children, Remote (Online / Phone Call Only) Studies

Developing a Romantic Relationships Program for Autistic Young Adults with Intellectual Disability

We are making a program to teach autistic young adults with intellectual disability (ID) about romantic relationships. We are partnering with:

  • Young adults (18+) who have autism and mild/moderate intellectual disability
  • Parents and guardians of young adults (18+) who have autism and mild/moderate intellectual disability

Phase: N/A

Actively recruiting: Yes

Category: Adults, Remote (Online / Phone Call Only) Studies

Drive Focus Study

We are asking teens with autism between the ages of 16-21 who have expressed interest in learning how to drive or have received their learner's permit in the past year, and their parent/primary caregiver to participate in an interview study. The purpose of this study is to inform the development of driver training technology for autistic individuals who are interested in learning to drive. Participants will be asked to complete one or two interviews where they are shown images of the app and/or asked to test it out on a study-provided tablet. Interviews will take approximately 60 minutes. Participants will receive compensation for participation.

Phase: N/A

Actively recruiting: No

Category: One-Time Visit Studies

Multimodal Imaging in Autism

The purpose of this study is to understand how children's brains process sounds and language. Children with Autism Spectrum Disorder (ASD), Intellectual and Developmental Delay (IDD), or Developmental Language Disorder (DLD) often have trouble understanding sounds that are too close together compared to Typically Developing Controls (children without ASD, IDD, or DLD). Fast changes in speech can be hard for children. This may be awkward during conversations and difficult in social situations. This research will see if trouble with processing sounds contributes to language difficulties in children with ASD, IDD, and/or DLD.

Phase: N/A

Actively recruiting: Yes

Category: Children, Healthy Controls, MRI/Imaging Studies

Conditions: Autism Spectrum Disorder

PEDSnet Research Prioritization Strategy

PEDSnet and DBPNet seek youth (13-24), parents, and clinicians/scientists for the Intellectual and Developmental Disabilities (IDD) Research Prioritization Study. The goal is to develop a prioritized list of research questions that will immediately impact patient health outcomes, focusing on children with IDD.
Participants will answer open-ended questions on Viva Engage, a Microsoft platform, to share their thoughts and opinions. The study is entirely online, and parents and youth will be compensated for their time. To participate or learn more, complete our eligibility screener.

Phase: N/A

Actively recruiting: Yes

Category: Adults, Children, Remote (Online / Phone Call Only) Studies

Ready to CONNECT: Conversation and Language in Teens

Conversations are important for getting along in everyday life, but we don't really know what makes them successful. This study aims to find out what factors help make conversations better. By looking at different talking styles and techniques, we want to learn how to have more effective and enjoyable conversations. We are seeking volunteers between 12-15 years old both with and without autism and their families to partner with us.

Phase: N/A

Actively recruiting: Yes

Category: Children, Healthy Controls, Remote (Online / Phone Call Only) Studies

Social Coordination

The Social Coordination study aims to explore how people express themselves through facial expressions and body movements. We need help from adolescents ages 12 to 17 who have an Autism diagnosis or those who may be seeking a professional Autism evaluation to better understand behaviors they experience. We also need help from children and adolescents ages 8-17 who are typically developing. By utilizing new technology, researchers hope to identify differences in these expressions and movements. This information could lead to better methods for recognizing and understanding Autism and other behavioral conditions.

Phase: N/A

Actively recruiting: Yes

Category: Children, Healthy Controls, Remote (Online / Phone Call Only) Studies

SPARK: Simons Foundation Powering Autism Research for Knowledge

The mission of SPARK is to ignite research at an unprecedented scale to improve lives by advancing our understanding of autism. To join this national autism research cohort, individuals with a professional diagnosis of autism and their biological family members will be asked to share information about their medical and family history, as well as provide a DNA sample.

Phase: N/A

Actively recruiting: Yes

Category: Adults, Children, Remote (Online / Phone Call Only) Studies

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