Autoimmune Encephalitis Alliance
Established by families and patients affected by autoimmune encephalitis, the alliance provides information about autoimmune encephalitis, a list of current research studies, and latest news.
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Transverse Myelitis Association
The Transverse Myelitis Association advocates for people with a variety of immune-mediated disorders of the central nervous system, including acute disseminated encephalomyelitis, neuromyelitis optica spectrum disorder, optic neuritis, transverse myelitis (including AFM), and their caregivers.
Pediatric Sepsis Program Information Brochure
Information about sepsis and our Pediatric Sepsis Program is available for download in English, Spanish and Arabic.
Postpartum Support International
For help, visit the Postpartum Support International website or call or text the PSI HelpLine at 1-800-944-4773 (English and Spanish available). Individualized support is also available for the following: Help for Dads Help for Partners and Families Help for Military Families Help for Queer and Trans Parents
Mommies Enduring Neonatal Death
M.E.N.D. is a Christian, non-profit organization that reaches out to families who have suffered the loss of a baby. They provide a free bi-monthly newsletters, hold commemorative ceremonies, and host a variety of support groups throughout the nation.
Current Assessment of Health Care Transition Activities for Transitioning Youth to Adult Health Care Providers
Got Transition has developed two different measurement approaches, described below, to assess the extent to which the Six Core Elements of Health Care Transition 2.0 are being incorporated into clinical processes.
Medical Summary: Patient Transitioning to Adult Care
This document should be completed by pediatric medical providers, in collaboration with patients and their caregivers, then should be shared with the transitioning patient’s new, adult medical providers, as well as the patient and their caregivers, as appropriate.
Sample Transfer Letter: Patient Transitioning to Adult Care
This is a sample of a letter to be written by the pediatric provider, and sent to the new adult provider of a patient transitioning to adult care.
KISS Pediatric Stroke Support Group (Facebook)
The KISS Initiative is an online Facebook support group for families of pediatric stroke survivors. It is a public forum where parents share stories, resources and support.
World Pediatric Stroke Association
The World Pediatric Stroke Association (WPSA) works to raise awareness, knowledge and research about pediatric stroke. WPSA has a blog written by parents of stroke survivors and opportunities to connect with other families.