Leigh Syndrome Parent Network: Facebook Support Group
This page is dedicated solely to the parents of children who have been diagnosed with Leigh's Syndrome - a mitochondrial disease.
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International Mito Patients (IMP)
International Mito Patients is a network of national patient organizations involved in mito. The national patient organizations support and advocate for patients, fund research, increase awareness and improve education in their country.
The Lily Foundation
The Lily Foundation is the UK's leading mitochondrial disease charity and the largest charitable funder of mitochondrial research in Europe.
CureARS
CureARS Nonprofit is funding research for mt-aars disorders, mitochondrial ARS genes & providing support to families affected by the Mito ARS genes.
Leber’s Hereditary Optic Neuropathy (LHON)
This site was created by a family affected by Leber’s Hereditary Optic Neuropathy (LHON). By sharing what we learned as we struggled to cope with LHON, and what we've learned over the years since it first happened, we hope to help make the adjustment process smoother for others.
Systems Affected by Mitochondrial Disease
Dr. Marni Falk provides a list of systems that can be affected by mitochondrial disease, in this video by the United Mitochondrial Disease Foundation.
Mitochondria: Functions, Genomics and Disease
Dr. Marni Falk explains how healthy mitochondria work. She discusses how mutations in the mitochondrial and nuclear genomes can affect human health.
Water Safety for Your Special Needs Child
Drowning is the second leading cause of injury-related death in children, and those with cognitive issues like Down syndrome and autism are at greater risk.
Fire Safety for Your Special Needs Child
While every family should have a home fire safety plan, it's critical if you have a family member with cognitive or physical disabilities.
Street Safety for Your Special Needs Child
Children with disabilities are two to five times more likely to be killed in pedestrian accidents than their typically developing peers. Find safety tips.