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Pediatric IBD Fatigue Index, and the Pediatric IBD Disability Index Study

Pediatric IBD Fatigue Index, and the Pediatric IBD Disability Index Study

Contact

If you are interested in participating in the study or want to learn more, please get in touch. Contact us
This study is now recruiting. Learn more about enrolling here.

Description

Kids with IBD (inflammatory bowel disease) often struggle with tiredness and difficulty doing everyday activities, which can make life harder, but there aren't good tools to measure these problems in children. This study aims to create special tools to measure fatigue and disability in kids aged 2-18. Researchers will talk to kids and their parents to find out what issues matter most and use this information, along with medical records, to design the tools. The goal is to help doctors track these problems better and improve care for children with IBD. This study is being done in collaboration with the Shaare Zedek Medical Center. Participants will be compensated for their time and effort, upon completion of the interview.

Eligibility and criteria


IRB Number:
23-021607
Eligible age range:
2 years - 18 years
Clinical trial phase:
Phase I
Official title:
Development, Validation and Evaluation of the Pediatric IBD Fatigue Index (PIFI), and the Pediatric IBD Disability Index (PIDI) Including Patient Reported and Observer Reported Versions (PRO and obsRO)

What to expect

Visit 1:

Attend a 30-45-minute audio and video-recorded semi-structured interview

Review medications and medical history

Smiling CHOP patient holding shopping bag

We need families like you

Your time and participation make a difference in supporting the work of the Research Institute and children in our community. Learn more about opportunities to participate in our research.

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