MSeqDR Data Collection and Sharing

The study will require participants to indicate their interest in enrollment by contacting the study team at MSeqDR@chop.edu. Then, the study team will schedule a phone call to discuss the study and to complete a consent form and a brief questionnaire. After the consent form is complete, participants will sign release form(s) to obtain genomic data from laboratory. The study team will then facilitate genomic data transfer from laboratory to MSeqDR web portal. The study team will remove participant's personal information from the transferred genomic data and label it with a number unique to the participant which is called a GUID (global unique identifier). The GUID will then be sent by secure email to participants. Participants can share GUID to any clinician/researcher of their choice, however, the clinician/researcher will need to be granted approval by MSeqDR Data Access Committee. The genomic data will then be made accessible to approved clinician/researcher in MSeqDR for analysis.