Living with Diabetes: Challenges for Black Teens
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Description
This study wants to know about the problems that Black or African American teenagers with type 1 diabetes (T1D) and their families face. It also wants to see how these problems affect their feelings, behavior, and how they get along with others. The study will find out how well they can handle T1D and adapt to it. It will also learn how good things like being strong, family, and where they live might help young people who have to deal with hard things. This includes how well they handle their feelings, behavior, relationships, and T1D care.
Eligibility and criteria
What to expect
The study is looking for teenagers with type 1 diabetes who are Black or African American, are between 10 and 18 years old, have had diabetes for at least 6 months, and are able to read and understand the questions in the study. The study will ask teenagers and their parents questions about their lives, like whether they've had hard times, been treated unfairly, or how they feel and behave. They'll also talk about how well they get along with their family and how they take care of their diabetes. The study will use the teen's medical records to learn more about their diabetes. If they want to be in the study, teenagers and their parents can answer the questions in a private location at CHOP or somewhere else that's more convenient for them. They'll get reminders to finish the questions if they are not able to do them right away. It should take about an hour to answer all of the questions. Both the teenager and their parent will be paid for their time and effort.
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