CAPTURE Inflammatory Bowel Disease
Contact
Description
CAPTURE Inflammatory Bowel Disease (IBD) is a multi-center, longitudinal study designed with the goal of advancing precision medicine in pediatric IBD. Participants in CAPTURE IBD will continue to receive their usual care at the Children's Hospital of Philadelphia. The study team will ask participants to give blood, stool, and tissue samples at the same time as scheduled IBD clinical visits, endoscopy, or bowel surgery visits. Additionally, participants will be asked to complete electronic surveys at scheduled clinic visits, including any scheduled endoscopy or bowel surgery visits. The study will use the biospecimens and health data as a research resource that can help scientists to answer questions like:
- Can we help guide the selection of the most effective IBD therapies for pediatric and young adult populations?
- Can we help identify new treatments for pediatric patients who are not responding to current available therapies?
- Can we advance our understanding of who are the best candidates for surgery in pediatric Crohn's disease and the best treatment approaches after surgery?
CAPTURE IBD will enroll 3,000 patients, ages 4-21 years old, who have an established or suspected diagnosis of IBD at 12 sites across the United States.
Eligibility and criteria
What to expect
Participants in this study will continue to receive their usual IBD care at the Children's Hospital of Philadelphia. At each appointment with their IBD doctor, participants may be asked to complete surveys as well as provide blood and stool for the study. Additionally, if participants have a colonoscopy or bowel resection surgery at the Children's Hospital of Philadelphia, they may be asked to provide tissue biopsies for the study. Participants will be compensated for the time and effort involved with stool sample collection and survey completion throughout their study participation. Participation in the study will continue until the study ends (estimated to be about 10 years) unless a participant withdraws or stops receiving care at the Children's Hospital of Philadelphia.
We need families like you
Your time and participation make a difference in supporting the work of the Research Institute and children in our community. Learn more about opportunities to participate in our research.