Description
Dr. Weber at The Children’s Hospital of Philadelphia is looking for boys and young men with Duchenne Muscular Dystrophy between 5-20 years old to participate in a study to learn more about bone health. Study participation includes completing two study visits: one baseline visit and one 12-month follow-up visit. To be eligible, participants must have used steroids for a minimum of 12 months by the time they complete their baseline visit. Eligible study participants will be paid for each study visit. If interested in hearing more about this study or being screened for eligibility, please contact Dr. David Weber at davidweberresearch@chop.edu.
What to expect
The following study procedures will be completed at both the baseline visit and the 12-month follow-up visit: a DXA scan, collection of a blood sample, collection of a urine sample, tests of muscle strength, a physical exam, and questionnaires. Participation will require travel to the Childrenâs Hospital of Philadelphia for both study visits.
