Assent and Decision-Making Study in Down Syndrome
Contact
Description
We are inviting teens and young adults with Down Syndrome and their care givers to participate in a study that seeks to improve the way we explain research studies to individuals with Down Syndrome. Our goal is to create tools to help with explaining what it means to be in
a research study and to get feedback on how we can improve these tools.
Eligibility and criteria
What to expect
In-person or remote semi-structured interviews with adolescents and young adults with Down Syndrome and their caregivers. Interviews will cover decision- making involvement and feedback on study materials. Interviews will be audio recorded.
Related specialties
Related conditions
We need families like you
Your time and participation make a difference in supporting the work of the Research Institute and children in our community. Learn more about opportunities to participate in our research.