ARPKD/HRFD Database

ARPKD/HRFD Database

Contact

 If you are interested in participating in the study or want to learn more, please get in touch. Contact us
This study is now recruiting. Learn more about enrolling here.

Description
CHOP is partnering with Children's National Medical Center (CNMC) to create a research database of data and blood samples of people who have autosomal polycystic kidney disease (ARPKD) or another hepato/renal fibrocystic disease (HRFD). The purpose is to try to learn more about the causes of these diseases. If you are interested in participating, we will collect data from your medical record to contribute to the database at CNMC. You may also provide an optional blood sample. You may visit arpkdb.org and download the FAQs for you and your child’s doctor or call the CHOP Research Coordinator, Mohini Dutt, at 267-425-3933.

Eligibility and criteria
IRB Number:
19-016284
Eligible age range:
1 months - 99 years
Clinical trial phase:
N/A
Official title:
Core A: The Hepato- Renal Fibrocystic Diseases Translational Resource

What to expect
We will collect data from your medical record to contribute to the database at CNMC. You may also provide an optional blood sample. 

Related specialties
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