17-SIBS study
Contact
Description
The purpose of this research study is to understandtheimpact of transplant on the quality of life of the entire family includingsibling donors, other siblings and parents.
Eligibility and criteria
What to expect
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mso-bidi-language:AR-SA">The study will enroll male and female subjects between
5 and 17 years of age who are
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mso-fareast-language:EN-US;mso-bidi-language:AR-SA">donating hematopoietic stem
cells (HSCs) to a sibling, or have a sibling receiving a transplant from a
source outside of the family.
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mso-ansi-language:EN-US;mso-fareast-language:EN-US;mso-bidi-language:AR-SA"> Their
parents will also be asked to participate. Participants
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EN-US;mso-fareast-language:EN-US;mso-bidi-language:AR-SA">will be asked to
complete four telephone interviews during a one-year period at the following
timepoints: Shortly before the transplant, 4 weeks after the transplant, 6
months after the transplant, and 1 year after the transplant. Each interview should take about 15-30
minutes to complete.
We need families like you
Your time and participation make a difference in supporting the work of the Research Institute and children in our community. Learn more about opportunities to participate in our research.