Diagnosed with VACTERL Association, Olivia found improved care and treatment at CHOP’s Suzi and Scott Lustgarten Center for GI Motility.

Holden and his brother, Elliott, share more than a love for cars and trucks. They also both have the same rare genetic neurologic disorder, known as MECP2 duplication syndrome.

When she was 12, Maddie was very active — in particular, she practiced gymnastics several hours a day. But stomach pains and weight loss signaled the start of a challenging medical journey for her and her family. 

What started as a bout of the flu for Sophia led to sepsis and significant medical complications that risked her life. She was transferred to CHOP where a multidisciplinary team of experts coordinated her complex care.  

CHOP’s diagnosis and treatment of a rare lung disease solved a medical mystery for Jacob. Shared care with his Virginia pulmonologist is keeping him healthy.

Successful surgery to repair a broken collarbone kept Jake’s hopes of becoming a professional race car driver alive. 

Diagnosed with leukemia at 3 months old, Asa received a revolutionary therapy that was pioneered at CHOP.

After three months of searching for answers, Omar’s family found a diagnosis — and hope, at Children’s Hospital of Philadelphia.

When an active 11-year-old suffered from a rare lymphatic disorder, his military family traveled to CHOP for the expert care he needed.

As a newborn, Ellie spent time in CHOP’s NICU. When she developed symptoms that led to a cancer diagnosis, the family knew that CHOP was the right place for care.

When their unborn baby was diagnosed with congenital diaphragmatic hernia (CDH), Alyssa and Louis turned to CHOP for treatment before and after birth.

From Chicago to Philadelphia: Parents of ailing teen go the distance for CHOP pulmonologist’s unique expertise.

Theo, a fifth grader, receives his behavioral healthcare in the same place where he receives his education: at school.

There was no “book” Ellen could refer to for medical guidance on her son, Evan, who has a rare genetic mutation.

Genetic sequencing revealed that Rafi had an extremely rare, often fatal disease — and the discovery was amazingly made before he had serious symptoms.

After CHOP successfully treated Zoe’s ruptured Achilles tendon, the 17-year-old is headed to college on a full athletic scholarship.

Rohan, 13, isn’t sure what path he wants to take in the future — athlete, engineer, architect, analytics or maybe some creative pursuit — but what he does know is that he’ll be successful because of the guidance he’s received from Jenelle Nissley-Tsiopinis, PhD, a psychologist in Center for the Management of ADHD at Children’s Hospital of Philadelphia.

Born with a rare condition affecting her bone marrow, 2-year-old Elizabeth has large care teams at CHOP and her local hospital who coordinate to keep her growing and happy.

Devon underwent surgery, chemotherapy and proton therapy for a brain tumor the size of a softball. Within months, she started college and made the Dean’s List.  

Lucy was born with small lungs and critical breathing challenges. The care she received at CHOP prepared her to go home with minimal breathing support.