Our patients' stories
From Surviving to Thriving: Elise’s Story
A heart mom reflects on how she navigates her son’s CHD with the help of the cardiac community.
Idiopathic Scoliosis and Posterior Spine Fusion: Lily’s story
Alabama girl comes to CHOP for spine surgery that straightens her spine and allows her to continue competitive dance.
Neuropathic Intestinal Dysmotility: Liyana’s Story
Liyana spent her first year in and out of hospitals as doctors tried to identify and treat her GI motility issue. Her family found answers, hope and healing at CHOP.
Chronic Lung Disease: Leila’s Story
Born at 26 weeks, Leila’s lungs failed to develop. Specialty care during her CHOP stay and after helped her breathe on her own and her family cope.
Listen: Intensive Program Helps Teens Who Stutter
At intensive CHOP program, teens who stutter learned tips from successful adults on how to manage the condition.
Skeletal Dysplasia, Thoracic Insufficiency and Pulmonary Hypoplasia: Klaire’s Story
Skeletal dysplasia and thoracic insufficiency syndrome led Klaire to have severely underdeveloped lungs. Expert treatment at CHOP has helped her thrive.
VACTERL Association: Olivia’s Story
Diagnosed with VACTERL Association, Olivia found improved care and treatment at CHOP’s Suzi and Scott Lustgarten Center for GI Motility.
Holden and Elliott’s Story: MECP2 Duplication Syndrome
Holden and his brother, Elliott, share more than a love for cars and trucks. They also both have the same rare genetic neurologic disorder, known as MECP2 duplication syndrome.
Pancreatic Acinar Cell Carcinoma: Maddie’s Story
When she was 12, Maddie was very active — in particular, she practiced gymnastics several hours a day. But stomach pains and weight loss signaled the start of a challenging medical journey for her and her family.
Sepsis Treatment and Follow-up Care: Sophia’s Story
What started as a bout of the flu for Sophia led to sepsis and significant medical complications that risked her life. She was transferred to CHOP where a multidisciplinary team of experts coordinated her complex care.
Interstitial Lung Disease: Jacob’s Story
CHOP’s diagnosis and treatment of a rare lung disease solved a medical mystery for Jacob. Shared care with his Virginia pulmonologist is keeping him healthy.
Clavicle Fracture and Recovery: Jake’s Story
Successful surgery to repair a broken collarbone kept Jake’s hopes of becoming a professional race car driver alive.
Acute Lymphoblastic Leukemia and CAR T-Cell Therapy: Asa’s Story
Diagnosed with leukemia at 3 months old, Asa received a revolutionary therapy that was pioneered at CHOP.
Diffuse Hyperinsulinism: Omar’s Story
After three months of searching for answers, Omar’s family found a diagnosis — and hope, at Children’s Hospital of Philadelphia.
From Portland to Philly: Bubba’s Journey with Chylopericardium
When an active 11-year-old suffered from a rare lymphatic disorder, his military family traveled to CHOP for the expert care he needed.
Neuroblastoma: Ellie’s Story
As a newborn, Ellie spent time in CHOP’s NICU. When she developed symptoms that led to a cancer diagnosis, the family knew that CHOP was the right place for care.
Congenital Diaphragmatic Hernia Treatment Before Birth: Hendrix’s Story
When their unborn baby was diagnosed with congenital diaphragmatic hernia (CDH), Alyssa and Louis turned to CHOP for treatment before and after birth.
Interstitial Lung Disease: Quinn’s Story
From Chicago to Philadelphia: Parents of ailing teen go the distance for CHOP pulmonologist’s unique expertise.
ADHD and Emotional Control: Theo’s Story
Theo, a fifth grader, receives his behavioral healthcare in the same place where he receives his education: at school.
Evan’s Story: Deep Brain Stimulation to Treat Complex Movement Disorders
There was no “book” Ellen could refer to for medical guidance on her son, Evan, who has a rare genetic mutation.