Our patients' stories

Penile Reconstructive Surgery: Hadi's Story
Hadi’s family sought help around the world. They found it at Children's Hospital of Philadelphia where Hadi underwent successful penile reconstructive surgery.

Ventricular Septal Defect: Nora's Story
Diagnosed with a ventricular septal defect at 2 days old, Nora had open heart surgery a month later at CHOP's Cardiac Center.

Tracheal Stenosis and Lung Anomaly: Paige's Story
Paige had severe tracheal stenosis, a life-threatening airway narrowing. Doctors recommended major surgery – a fix made riskier since she had just one lung.

Hypoplastic Left Heart Syndrome: Lily’s Story
Lily was diagnosed with hypoplastic left heart syndrome (HLHS) and underwent several surgeries at CHOP's Cardiac Center to treat the complex congenital heart defect.

Transposition of the Great Arteries: Max's Story
Born with transposition of the great arteries, a life-threatening heart defect, Max was saved by open heart surgery at CHOP's Cardiac Center.

Bilateral Vocal Cord Paralysis: Lailani's Story
Diagnosed with bilateral vocal cord paralysis as a baby, Lailani was unable to breathe on her own until age nine. That's when her sought treatment at CHOP’s Center for Pediatric Airway Disorders.

Hypoplastic Left Heart Syndrome: Maya's Story
Diagnosed before birth with hypoplastic left heart syndrome, Maya received care and life-saving open heart surgery from CHOP's Cardiac Center.
Biliary Atresia: Chris' Story
Chris has come a long way in the past year since he was diagnosed with biliary atresia, a liver disease. He has been helped by the Biliary Atresia Program at Children's Hospital of Philadelphia (CHOP).

Tetralogy of Fallot: Brittany's Story
Brittany Rotonda shares her experience living with tetralogy of Fallot and how she found comfort and hope at the Philadelphia Adult Congenital Heart Center, a joint program of CHOP and Penn.

Tracheoesophageal Fistula and Laryngomalacia: Shaika's Story
Born prematurely and with many congenital abnormalities, Shaika traveled from the United Arab Emirates to Children's Hospital for care and treatment.

Hypoplastic Left Heart Syndrome: Xavier’s Story
Xavier was diagnosed with hypoplastic left heart syndrome before he was born. At CHOP's Cardiac Center, he's undergoing life-saving surgeries to treat this congenital heart defect.

Congenital Cystic Adenomatoid Malformation (CCAM): Max's Story
Before he was even born, Max Nazzaro’s treatment for congenital cystic adenomatoid malformation (CCAM) began at The Children's Hospital of Philadelphia.

Congenital Cystic Adenomatoid Malformation (CCAM): Roberto’s Story
Roberto Rodriquez Jr. was the first-ever fetal surgery patient at CHOP, undergoing a prenatal procedure to remove a lung lesion in 1995.

Giant Omphalocele: Jackson's Story
Casey and Bryan Kirsch were determined to give their son Jackson every chance to live a healthy life when they learned that he had a giant omphalocele.

Amplified Musculoskeletal Pain Syndrome: Laurel's Story
After months of debilitating pain, Laurel found relief, support and healing from the Center for Amplified Musculoskeletal Pain Syndrome at The Children's Hospital of Philadelphia.

Spina Bifida and Fetal Surgery: Sean's Story
Prenatally diagnosed with myelomeningocele (MMC), the most severe form of spina bifida, Sean Mulligan underwent fetal surgery at CHOP to repair the birth defect.

Congenital Diaphragmatic Hernia (CDH): Cora's Story
After learning their baby had CDH, the Pappas family traveled from Tennessee to seek care at CHOP's Center for Fetal Diagnosis and Treatment in Philadelphia.

Spina Bifida and Fetal Surgery: Audrey's Story
Audrey Rose Oberio was prenatally diagnosed with myelomeningocele (MMC), the most severe form of spina bifida. She became CHOP's 1,000th fetal surgery patient.

Congenital Diaphragmatic Hernia: Peyton's Story
Peyton Laricks underwent successful surgery at Children's Hospital of Philadelphia to repair a prenatally diagnosed congenital diaphragmatic hernia (CDH).

Gardner Syndrome: Felix's Story
When Felix, who is from Caracas, Venezuela, was diagnosed with Gardner syndrome, a condition that often leads to colorectal cancer, his parents found him the best care at CHOP.