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Patient Stories

Our patients' stories

Patient story

Bilateral Vocal Cord Paralysis: Lailani's Story

Diagnosed with bilateral vocal cord paralysis as a baby, Lailani was unable to breathe on her own until age nine. That's when her sought treatment at CHOP’s Center for Pediatric Airway Disorders.

Patient story

Biliary Atresia: Chris' Story

Chris has come a long way in the past year since he was diagnosed with biliary atresia, a liver disease. He has been helped by the Biliary Atresia Program at Children's Hospital of Philadelphia (CHOP).

Patient story

Tetralogy of Fallot: Brittany's Story

Brittany Rotonda shares her experience living with tetralogy of Fallot and how she found comfort and hope at the Philadelphia Adult Congenital Heart Center, a joint program of CHOP and Penn.

Patient story

Hypoplastic Left Heart Syndrome: Xavier’s Story

Xavier was diagnosed with hypoplastic left heart syndrome before he was born. At CHOP's Cardiac Center, he's undergoing life-saving surgeries to treat this congenital heart defect.

Patient story

Tetralogy of Fallot: Ben's Story

When Diana and Corey learned their unborn baby had tetralogy of Fallot, they came to CHOP's Fetal Heart Program to better understand the diagnosis, develop a birth plan and prepare for their baby’s open heart surgery. 

Patient story

Diffuse Hyperinsulinism: Rianna's Story

Rianna was diagnosed with diffuse hyperinsulinism when she was 10 days old. She was referred to the Congenital Hyperinsulinism Center at The Children's Hospital of Philadelphia for treatment.

Patient story

Cardiomyopathy and Heart Transplant: Julia's Story

Diagnosed with dilated cardiomyopathy as an infant, Julia was 13 when she had a heart attack at school. She received a life-saving heart transplant at The Children's Hospital of Philadelphia. 

Patient story

Supraventricular Tachycardia: Oliver’s Story

Cardiologists at Children's Hospital of Philadelphia diagnosed Oliver with supraventricular tachycardia when he was 1, then found the right treatment to keep his heart beating normally.

Patient story

Gardner Syndrome: Felix's Story

When Felix, who is from Caracas, Venezuela, was diagnosed with Gardner syndrome, a condition that often leads to colorectal cancer, his parents found him the best care at CHOP.  

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