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Patient Stories

Our patients' stories

Vincenzo with his parents in the N/IICU
Patient story

Gastroschisis: Vincenzo’s Story

Diagnosed prenatally with the abdominal wall defect gastroschisis, Vincenzo’s family traveled to CHOP for delivery and expert surgical repair. See how he's doing 10 years later.

Patient story

Sudden Cardiac Arrest: Albe’s Story

Albe was rushed to the Emergency Department at Children's Hospital of Philadelphia for sudden cardiac arrest. The Critical Care Medicine team was ready to save his life.

Patient story

Aortic Stenosis: Sarah's Story

Born with a heart defect called aortic stenosis, Sarah had two open heart surgeries when she was young. Now 16, she’s an honor roll student who loves art and design.

Patient story

Patent Ductus Arteriosus and Trisomy 21: Katie's Story

Born with trisomy 21 (Down syndrome), Katie's doctors knew to be on the lookout for potential heart issues. At 3 months old, Katie was diagnosed with patent ductus arteriosus and came to CHOP's Cardiac Center for help.

Patient story

Coronary Artery Anomaly: Quinn's Story

Quinn was diagnosed with a type of coronary artery anomaly called anomalous left coronary artery from the pulmonary artery (ALCAPA) and treated by the Cardiac team at CHOP, giving him a better chance at survival.

Patient story

Hypoplastic Left Heart Syndrome: Caila's Story

Caila was diagnosed with hypoplastic left heart syndrome (HLHS) and treated at CHOP by the Cardiac Center team, which is at the forefront of diagnosing and treating HLHS.

Patient story

Penile Reconstructive Surgery: Hadi's Story

Hadi’s family sought help around the world. They found it at Children's Hospital of Philadelphia where Hadi underwent successful penile reconstructive surgery.

Patient story

Tracheal Stenosis and Lung Anomaly: Paige's Story

Paige was diagnosed with severe tracheal stenosis, a narrowing of the trachea. The only way to widen her airway was with a major surgery. But with only one lung, it would be incredibly risky.

Patient story

Bilateral Vocal Cord Paralysis: Lailani's Story

Diagnosed with bilateral vocal cord paralysis as a baby, Lailani was unable to breathe on her own until age nine. That's when her sought treatment at CHOP’s Center for Pediatric Airway Disorders.

Patient story

Biliary Atresia: Chris' Story

Chris has come a long way in the past year since he was diagnosed with biliary atresia, a liver disease. He has been helped by the Biliary Atresia Program at Children's Hospital of Philadelphia (CHOP).

Patient story

Tetralogy of Fallot: Brittany's Story

Brittany Rotonda shares her experience living with tetralogy of Fallot and how she found comfort and hope at the Philadelphia Adult Congenital Heart Center, a joint program of CHOP and Penn.

Patient story

Hypoplastic Left Heart Syndrome: Xavier’s Story

Xavier was diagnosed with hypoplastic left heart syndrome before he was born. At CHOP's Cardiac Center, he's undergoing life-saving surgeries to treat this congenital heart defect.

Patient story

Tetralogy of Fallot: Ben's Story

When Diana and Corey learned their unborn baby had tetralogy of Fallot, they came to CHOP's Fetal Heart Program to better understand the diagnosis, develop a birth plan and prepare for their baby’s open heart surgery. 

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