Our patients' stories
Gastroschisis: Vincenzo’s Story
Diagnosed prenatally with the abdominal wall defect gastroschisis, Vincenzo’s family traveled to CHOP for delivery and expert surgical repair. See how he's doing 10 years later.
Sudden Cardiac Arrest: Albe’s Story
Albe was rushed to the Emergency Department at Children's Hospital of Philadelphia for sudden cardiac arrest. The Critical Care Medicine team was ready to save his life.
Aortic Stenosis: Sarah's Story
Born with a heart defect called aortic stenosis, Sarah had two open heart surgeries when she was young. Now 16, she’s an honor roll student who loves art and design.
Inflammatory Myofibroblastic Tumor and Laryngeal Nerve Reinnervation: Michael's Story
After living with vocal cord paralysis for six years after a tumor was removed, Michael and his family found CHOP's Center for Pediatric Airway Disorders and laryngeal nerve reinnervation, a procedure that would give him his voice back.
Patent Ductus Arteriosus and Trisomy 21: Katie's Story
Born with trisomy 21 (Down syndrome), Katie's doctors knew to be on the lookout for potential heart issues. At 3 months old, Katie was diagnosed with patent ductus arteriosus and came to CHOP's Cardiac Center for help.
Coronary Artery Anomaly: Quinn's Story
Quinn was diagnosed with a type of coronary artery anomaly called anomalous left coronary artery from the pulmonary artery (ALCAPA) and treated by the Cardiac team at CHOP, giving him a better chance at survival.
Hypoplastic Left Heart Syndrome: Caila's Story
Caila was diagnosed with hypoplastic left heart syndrome (HLHS) and treated at CHOP by the Cardiac Center team, which is at the forefront of diagnosing and treating HLHS.
Penile Reconstructive Surgery: Hadi's Story
Hadi’s family sought help around the world. They found it at Children's Hospital of Philadelphia where Hadi underwent successful penile reconstructive surgery.
Ventricular Septal Defect: Nora's Story
Diagnosed with a ventricular septal defect at 2 days old, Nora had open heart surgery a month later at CHOP's Cardiac Center.
Tracheal Stenosis and Lung Anomaly: Paige's Story
Paige was diagnosed with severe tracheal stenosis, a narrowing of the trachea. The only way to widen her airway was with a major surgery. But with only one lung, it would be incredibly risky.
Hypoplastic Left Heart Syndrome: Lily’s Story
Lily was diagnosed with hypoplastic left heart syndrome (HLHS) and underwent several surgeries at CHOP's Cardiac Center to treat the complex congenital heart defect.
Transposition of the Great Arteries: Max's Story
Born with transposition of the great arteries, a life-threatening heart defect, Max was saved by open heart surgery at CHOP's Cardiac Center.
Bilateral Vocal Cord Paralysis: Lailani's Story
Diagnosed with bilateral vocal cord paralysis as a baby, Lailani was unable to breathe on her own until age nine. That's when her sought treatment at CHOP’s Center for Pediatric Airway Disorders.
Hypoplastic Left Heart Syndrome: Maya's Story
Diagnosed before birth with hypoplastic left heart syndrome, Maya received care and life-saving open heart surgery from CHOP's Cardiac Center.
Biliary Atresia: Chris' Story
Chris has come a long way in the past year since he was diagnosed with biliary atresia, a liver disease. He has been helped by the Biliary Atresia Program at Children's Hospital of Philadelphia (CHOP).
Tetralogy of Fallot: Brittany's Story
Brittany Rotonda shares her experience living with tetralogy of Fallot and how she found comfort and hope at the Philadelphia Adult Congenital Heart Center, a joint program of CHOP and Penn.
Tracheoesophageal Fistula and Laryngomalacia: Shaika's Story
Born prematurely and with many congenital abnormalities, Shaika traveled from the United Arab Emirates to Children's Hospital for care and treatment.
Hypoplastic Left Heart Syndrome: Xavier’s Story
Xavier was diagnosed with hypoplastic left heart syndrome before he was born. At CHOP's Cardiac Center, he's undergoing life-saving surgeries to treat this congenital heart defect.
Chromosome 22q11.2 Deletion and Tetralogy of Fallot: Jack's Story
Born with a heart defect called tetralogy of Fallot, Jack was just 9 days old when his family learned he also had chromosome 22q11.2 deletion, a rare chromosomal difference.
Tetralogy of Fallot: Ben's Story
When Diana and Corey learned their unborn baby had tetralogy of Fallot, they came to CHOP's Fetal Heart Program to better understand the diagnosis, develop a birth plan and prepare for their baby’s open heart surgery.