Our patients' stories
Sickle Cell Disease: Naomi's Story
Diagnosed with sickle cell disease before she was even born, Naomi is thriving today thanks to the care and support from her team at CHOP's Comprehensive Sickle Cell Center.
Neurofibromatosis and Pediatric Stroke: Patrick's Story
Patrick suffered a stroke during surgery to remove a tumor on his cerebellum. Here, he shares the story of his recovery at CHOP.

Pediatric Stroke: Addie's Story
Addie's mom describes the joy and sadness of raising her 4-year-old daughter. Addie had a stroke as a baby and still has weakness on one side of her body.

Twin-twin Transfusion Syndrome: Savaughn and Savion's Story
Five months pregnant with twins, Kim Hebron and her husband Vaughn learned their babies had a life-threatening condition called twin-twin transfusion syndrome (TTTS).

Type 1 Diabetes: Emily Ireland's Story
Meet Emily Ireland. Diagnosed with type 1 diabetes when she was 12 years old, Emily never lets her diabetes stop her from doing the things she enjoys.

Hirschsprung's Disease: Khloe's Story
Khloe was just 2 days old when doctors noticed she was having digestive problems. She was transferred to CHOP where doctors discovered she had Hirschsprung’s disease.

Food Selectivity and Anxiety: Arianna's Story
A mother tells the story of her daughter, Arianna, whose food anxiety and selectivity made mealtimes stressful and upsetting. The family turned to CHOP's Pediatric Feeding and Swallowing Center for help.

Diabetes, Hyperthyroidism and Celiac Disease: Hannah's Story
Thirteen-year-old Hannah Rowan has type 1 diabetes, hyperthyroidism, and was recently diagnosed with celiac disease. But all of these auto-immune conditions don't slow her down.

ECMO Treatment: Katelyn's Story
Hundreds of gravely ill newborns have benefits from EMCO, a machine that temporarily acts as the baby's heart and lungs, since 1990 when Katelyn became CHOP's first ECMO patient.

Failure to Thrive: Aaron's Story
Katharina Lucas, Aaron's mother, describes how the Pediatric Feeding and Swallowing Center at CHOP helped teach her young son to eat after a diagnosis of failure to thrive.

Type 1 Diabetes: Emily's Story
Diagnosed with type 1 diabetes at age 8, Emily Gold has been working with her family and community to raise money to help find a cure for the condition.

Trisomy 21 (Down Syndrome): Jenna's Story
Lizanne Magarity Pando shares her daughter Jenna's story about living with Trisomy 21, also known as Down syndrome.

Liver Transplant: Carter's Story
Born with ornithine transcarbamylase (OTC) deficiency, a rare metabolic disorder, Carter was 9 months old when he received a life-saving liver transplant at CHOP.

Sensory Processing Disorder: Toby's Story
A sensory processing disorder made eating a challenge for Toby. The Day Hospital Feeding Program at CHOP taught him how to like new foods.

Type 2 Diabetes: O'Dell's Story
Diagnosed with type 2 diabetes when he was 12, O'Dell Richardson has benefited from treatment and advice from the staff at CHOP's Diabetes Center for Children.

Trisomy 21 (Down Syndrome): John and Sara's Story
John and Sara have been coming to CHOP's Trisomy 21 Clinic, now the Trisomy 21 Program, all of their lives. The program provides care coordination for children and adults with trisomy 21.

Tetralogy of Fallot and Craniosynostosis: William's Story
William was born with tetralogy of Fallot, a heart condition that requires open heart surgery shortly after birth, and had surgery at CHOP.

Sacrococcygeal Teratoma (SCT): Rowan's Story
Rowan was diagnosed before birth with a sacrococcygeal teratoma (SCT), a tumor located on her tailbone. She underwent surgery at CHOP the day after she was born.

Type 1 Diabetes: Chase's Story
In New Year’s Day in 2001, Chase Kroll was diagnosed with type 1 diabetes. Ten years later, he is headed to college. CHOP's Diabetes Center for Children helped him take control of his health.

Trisomy 21 (Down Syndrome): Cristin's Story
When Cristin needed to transition to adult healthcare, she had the support of the Trisomy 21 Program at CHOP to help guide her.