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Patient Stories

Our patients' stories

Patient story

Sickle Cell Disease: Naomi's Story

Diagnosed with sickle cell disease before she was even born, Naomi is thriving today thanks to the care and support from her team at CHOP's Comprehensive Sickle Cell Center.

baby addie
Patient story

Pediatric Stroke: Addie's Story

Addie's mom describes the joy and sadness of raising her 4-year-old daughter. Addie had a stroke as a baby and still has weakness on one side of her body.

Patient story

Type 1 Diabetes: Emily Ireland's Story

Meet Emily Ireland. Diagnosed with type 1 diabetes when she was 12 years old, Emily never lets her diabetes stop her from doing the things she enjoys.

Patient story

Hirschsprung's Disease: Khloe's Story

Khloe was just 2 days old when doctors noticed she was having digestive problems. She was transferred to CHOP where doctors discovered she had Hirschsprung’s disease.

Patient story

Food Selectivity and Anxiety: Arianna's Story

A mother tells the story of her daughter, Arianna, whose food anxiety and selectivity made mealtimes stressful and upsetting. The family turned to CHOP's Pediatric Feeding and Swallowing Center for help.

Patient story

ECMO Treatment: Katelyn's Story

Hundreds of gravely ill newborns have benefits from EMCO, a machine that temporarily acts as the baby's heart and lungs, since 1990 when Katelyn became CHOP's first ECMO patient.

Patient story

Failure to Thrive: Aaron's Story

Katharina Lucas, Aaron's mother, describes how the Pediatric Feeding and Swallowing Center at CHOP helped teach her young son to eat after a diagnosis of failure to thrive.

Patient story

Type 1 Diabetes: Emily's Story

Diagnosed with type 1 diabetes at age 8, Emily Gold has been working with her family and community to raise money to help find a cure for the condition.

Patient story

Liver Transplant: Carter's Story

Born with ornithine transcarbamylase (OTC) deficiency, a rare metabolic disorder, Carter was 9 months old when he received a life-saving liver transplant at CHOP.  

Patient story

Type 2 Diabetes: O'Dell's Story

Diagnosed with type 2 diabetes when he was 12, O'Dell Richardson has benefited from treatment and advice from the staff at CHOP's Diabetes Center for Children.

Patient story

Trisomy 21 (Down Syndrome): John and Sara's Story

John and Sara have been coming to CHOP's Trisomy 21 Clinic, now the Trisomy 21 Program, all of their lives. The program provides care coordination for children and adults with trisomy 21.

Patient story

Sacrococcygeal Teratoma (SCT): Rowan's Story

Rowan was diagnosed before birth with a sacrococcygeal teratoma (SCT), a tumor located on her tailbone. She underwent surgery at CHOP the day after she was born.

Patient story

Type 1 Diabetes: Chase's Story

In New Year’s Day in 2001, Chase Kroll was diagnosed with type 1 diabetes. Ten years later, he is headed to college. CHOP's Diabetes Center for Children helped him take control of his health.  

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