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Patient Stories

Our patients' stories

Patient story

Eosinophilic Esophagitis: Colin's Story

Colin has eosinophilic esophagitis, a rare inflammatory condition of the esophagus, and receives care at CHOP, which is one of the few pediatric hospitals with a specialized program for the condition.

Patient story

Hearing Loss: Maggie's Story

Diagnosed with bilateral hearing loss at 20 months old, Maggie's family sought help from CHOP's Center for Childhood Communications.

seth
Patient story

Childhood Apraxia of Speech: Seth's Story

Diagnosed with childhood apraxia of speech when he was 3 years old, Seth continues weekly speech therapy at CHOP Specialty Care Center in Bucks County, PA.

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Patient story

Gaucher Disease: Amber's Story

Bette Mickley didn't believe her daughter Amber had growing pains, for one simple reason: Amber wasn’t growing. Instead, the family learned Amber has Gaucher Disease, a rare genetic disorder.

Patient story

GE Reflux and Failure to Thrive: Jack's Story

After a diagnosis of GE reflux and failure to thrive, a mother tells how the Day Hospital at CHOP's Feeding and Swallowing Center helped her son Jack learn to eat.

Patient story

Gaucher Disease: Steven's Story

When Diana Huang learned her nephew, Steven, was sick with Gaucher disease in his native China, she helped him come to The Children's Hospital of Philadelphia for treatment.

jack
Patient story

Jejunal Atresia: Jack's Story

Born prematurely with an enlarged area on his upper intestine, Jack was diagnosed with multiple jejunal atresia. Though it occurs only 1 in 3,000 live births, the expert team at The Children's Hospital of Philadelphia knew how to treat his rare condition.

Patient story

Failure to Thrive: Luke's Story

The Feeding Program at The Children's Hospital of Philadelphia taught Luke to eat after a diagnosis of failure to thrive.

Patient story

Type 1 Diabetes: Emily Ireland's Story

Meet Emily Ireland. Diagnosed with type 1 diabetes when she was 12 years old, Emily never lets her diabetes stop her from doing the things she enjoys.

Patient story

Hirschsprung's Disease: Khloe's Story

Khloe was just 2 days old when doctors noticed she was having digestive problems. She was transferred to CHOP where doctors discovered she had Hirschsprung’s disease.

Patient story

Food Selectivity and Anxiety: Arianna's Story

A mother tells the story of her daughter, Arianna, whose food anxiety and selectivity made mealtimes stressful and upsetting. The family turned to CHOP's Pediatric Feeding and Swallowing Center for help.

Patient story

ECMO Treatment: Katelyn's Story

Hundreds of gravely ill newborns have benefits from EMCO, a machine that temporarily acts as the baby's heart and lungs, since 1990 when Katelyn became CHOP's first ECMO patient.

Patient story

Failure to Thrive: Aaron's Story

Katharina Lucas, Aaron's mother, describes how the Pediatric Feeding and Swallowing Center at CHOP helped teach her young son to eat after a diagnosis of failure to thrive.

Patient story

Type 1 Diabetes: Emily's Story

Diagnosed with type 1 diabetes at age 8, Emily Gold has been working with her family and community to raise money to help find a cure for the condition.

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