Our patients' stories

Anterior Cruciate Ligament (ACL) Injury: Aliyah's Story
Aliyah, a champion gymnast, suffered an ACL injury during practice. Just over a year after surgery at CHOP, she competed at the Junior Olympic Level 9 Regionals in Virginia.

Acute Lymphoblastic Leukemia: Shawn's Story
On Shawn’s fifth birthday, doctors at CHOP told his parents their son had acute lymphoblastic leukemia (ALL), the most common form of cancer in children.

Rhabdomyosarcoma Survivor: Alex's Story
Alex Potter survived metastatic nasopharyngeal rhabdomyosarcoma. Now a college grad, he's followed by the Cancer Survivorship Program.

Type 1 Diabetes: The Delaney Family
When two members of the Delaney family were diagnosed with type 1 diabetes, they came to Children's Hospital of Philadelphia to learn how they can all live well with diabetes.

Neuroblastoma: Sarah's Story
This young woman continues to receive the best follow-up care from CHOP after being treated for neuroblastoma as a toddler.

Hereditary Neuroblastoma: Edie’s Story
After spending most of her life being treated for neuroblastoma, it seemed that 18-month-old Edie had run out of options. Her family turned to The Children’s Hospital of Philadelphia, where an experimental treatment changed the course of this little girl’s life.
Autism Spectrum Disorder: Brock's Story
Brock Ott was 2 years old when his parents began to notice differences between him and other kids his age. Their research pointed to autism, but his local pediatrician and a neurologist both dismissed the idea.
RSV, UTI and Vesicoureteral Reflux: Sydney's Story
When Sydney's doctors became concerned at test results of her kidneys and urinary tract, they referred her to CHOP for expert urology care.
Sickle Cell Disease: Nadir's Story
Diagnosed with sickle cell disease as a baby, Nadir continues to receive comprehensive care from CHOP's Comprehensive Sickle Cell Center.

Epilepsy and the Ketogenic Diet: Korey's Story
Korey has epilepsy, one of the most common brain disorders in children, but his treatment is unusual: a diet of exactly 90 percent fat, 7 percent protein and 3 percent carbohydrates. It’s called the ketogenic diet and it's proven effective for children whose epilepsy does not respond to medication.

Omphalocele and Feeding Challenges: Eliana's Story
When Anna was 18 weeks pregnant, she discovered one of twins she was carrying had omphalocele, a rare, potentially life-threatening birth defect.

Concussion: Nicholas and Duckea's Story
Nicholas got his concussion playing ice hockey. Duckea got her concussion falling off her bike. Both teens were treated for their concussion symptoms at The Children’s Hospital of Philadelphia.

Goldenhar Syndrome & Von Willebrand Syndrome: Aidan's Story
Aidan was born with Goldenhar syndrome and Von Willebrand syndrome, two rare genetic conditions that need expert medical management. He receives care from The Children's Hospital of Philadelphia at CHOP Specialty Care Centers in New Jersey.

Papillary Thyroid Cancer: Emily's Story
Diagnosed with papillary thyroid cancer as a teen, Emily Stratton received treatment at CHOP's Pediatric Thyroid Center. Today, the 20-year-old is pursuing a career in nursing.
Beckwith-Wiedemann Syndrome and Hyperinsulinism: Cooper's Story
Cooper traveled from Rhode Island to CHOP for treatment of Beckwith-Wiedemann syndrome and hyperinsulinism. Now 2 1/2 years old, he is happy, active and intellectually on target.
Beckwith-Wiedemann Syndrome and Hypoglycemia: Jaylene's Story
Jaylene was born with Beckwith-Wiedemann syndrome and hypoglycemia. She was treated at the Congenital Hyperinsulinism Center at The Children's Hospital of Philadelphia.
Burns, Amputation and Rehabilitation: Sammy's Story
At age 2, Sammy suffered burns over 50 percent of his body, requiring many procedures, including amputation of both of his lower legs. He has come a long way in the eight years since he began working with CHOP's rehabilitation team.

Twin-twin Transfusion Syndrome: Epsteins' and Conway Family Foundation's Story
Much research has been done about helping children survive pregnancy with twin-twin transfusion syndrome, but little research has addressed ongoing challenges these children may face. To address that need, the Epsteins and the Conway Family Foundation have funded a multiyear study at CHOP .

GI Motility: Irma and Norman Braman's Story
A $5 million gift from Irma and Norman Braman helped create the Suzi and Scott Lustgarten Center for GI Motility, a new center at CHOP to treat gastrointestinal motility disorders.
Atrioventricular Canal Defect: Madeline's Story
Madeline, a healthy girl at 9, had a heart operation at CHOP at 5 days old. Her parents and grandfather donate to CHOP to fund research for cardiac care.