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Patient Stories

Our patients' stories

Patient story

Acetabular Dysplasia: Angeline’s Story

When hip pain sidelined Angeline Mays from field hockey, she sought help from the Young Adult Hip Preservation Program at The Children’s Hospital of Philadelphia.

Patient story

Arrhythmogenic Right Ventricle Dysplasia: Brett’s Story

At age 13, Brett was diagnosed with arrhythmogenic right ventricle dysplasia (ARVD). With the help of an implantable cardioverter defibrillator (ICD) and the support of his team at CHOP, Brett was able to return to the activities he loved.

Patient story

Type 1 Diabetes: Ana’s Story

In the 10 years since her diagnosis with type 1 diabetes, Ana had learned so much about herself and her accomplishments. She wrote down what this bittersweet, 10-year anniversary means to her.

Patient story

Cornelia de Lange Syndrome: Megan’s Story

As a child with Cornelia de Lange syndrome, little was known about how the disorder would affect Megan Ramsey’s long-term functioning, but she confronts every challenge with an indomitable spirit.

Patient story

Cornelia de Lange Syndrome: Connor’s Story

When Connor Feehan was diagnosed with Cornelia de Lange syndrome, his family learned that living with this disorder is about adapting, adjusting, and expecting the best. The Children’s Hospital of Philadelphia is helping them do that.

Patient story

Slipped capital femoral epiphysis: Zachary’s story

Diagnosed with slipped capital femoral epiphysis of the hip, 12-year-old Zachary faced life-long disability. Thanks to a specialized surgery available at The Children’s Hospital of Philadelphia, surgeons were able to restore Zachary’s normal hip anatomy, allowing him to regain his active lifestyle.

Patient story

Dilated Cardiomyopathy: Chris' Story

Chris was diagnosed with a dilated cardiomyopathy when he was 15 years old and underwent a successful heart transplant at CHOP.

Patient story

Trisomy 21 (Down Syndrome): Evan's Story

Born with Down syndrome, Evan has been treated at Children’s Hospital of Philadelphia since he was a baby. His family shares how that care has made a difference in Evan’s life.

Patient story

Type 1 Diabetes: Andrew's Story

Andrew Davis knows the ups and downs of living with type 1 diabetes. Diagnosed at age 5, he is now a junior at Rutgers University.

Patient story

Thyroid Cancer: Josh's Story

After the endocrinologist who had been treating Joshua's thyroid cancer said he didn't know what to next, his family turned to the Pediatric Thyroid Center at CHOP for help.

Patient story

Thyroid Nodule: Jessica's Story

An MRI after a gymnastics injury showed that Jessica has a worrisome spot on her thyroid. Her family brought her to CHOP to be seen by a specialist.

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