Our patients' stories
Trisomy 21 (Down Syndrome): Evan's Story
Born with Down syndrome, Evan has been treated at Children’s Hospital of Philadelphia since he was a baby. His family shares how that care has made a difference in Evan’s life.
Plastic Bronchitis and Lymphatic Intervention: Jameson's Story
Jameson — who was born with HLHS — was diagnosed with plastic bronchitis and received treatment at Children's Hospital of Philadelphia.
Type 1 Diabetes: Andrew's Story
Andrew Davis knows the ups and downs of living with type 1 diabetes. Diagnosed at age 5, he is now a junior at Rutgers University.
Thyroid Cancer: Josh's Story
After the endocrinologist who had been treating Joshua's thyroid cancer said he didn't know what to next, his family turned to the Pediatric Thyroid Center at CHOP for help.
Thyroid Nodule: Jessica's Story
An MRI after a gymnastics injury showed that Jessica has a worrisome spot on her thyroid. Her family brought her to CHOP to be seen by a specialist.
Papillary Thyroid Cancer: Christopher's Story
Chris developed an unusual combination of stomach symptoms that led to a surprising diagnosis - thyroid cancer.
Anterior Cruciate Ligament (ACL) Injury: Aliyah's Story
Aliyah, a champion gymnast, suffered an ACL injury during practice. Just over a year after surgery at CHOP, she competed at the Junior Olympic Level 9 Regionals in Virginia.
Hereditary Neuroblastoma: Edie’s Story
After spending most of her life being treated for neuroblastoma, it seemed that 18-month-old Edie had run out of options. Her family turned to The Children’s Hospital of Philadelphia, where an experimental treatment changed the course of this little girl’s life.
Autism Spectrum Disorder: Brock's Story
Brock Ott was 2 years old when his parents began to notice differences between him and other kids his age. Their research pointed to autism, but his local pediatrician and a neurologist both dismissed the idea.
Acute Lymphoblastic Leukemia: Shawn's Story
On Shawn’s fifth birthday, doctors at CHOP told his parents their son had acute lymphoblastic leukemia (ALL), the most common form of cancer in children.
Rhabdomyosarcoma Survivor: Alex's Story
Alex Potter survived metastatic nasopharyngeal rhabdomyosarcoma. Now a college grad, he's followed by the Cancer Survivorship Program.
Type 1 Diabetes: The Delaney Family
When two members of the Delaney family were diagnosed with type 1 diabetes, they came to Children's Hospital of Philadelphia to learn how they can all live well with diabetes.
Neuroblastoma: Sarah's Story
This young woman continues to receive the best follow-up care from CHOP after being treated for neuroblastoma as a toddler.
RSV, UTI and Vesicoureteral Reflux: Sydney's Story
When Sydney's doctors became concerned at test results of her kidneys and urinary tract, they referred her to CHOP for expert urology care.
Sickle Cell Disease: Nadir's Story
Diagnosed with sickle cell disease as a baby, Nadir continues to receive comprehensive care from CHOP's Comprehensive Sickle Cell Center.
Epilepsy and the Ketogenic Diet: Korey's Story
Korey has epilepsy, one of the most common brain disorders in children, but his treatment is unusual: a diet of exactly 90 percent fat, 7 percent protein and 3 percent carbohydrates. It’s called the ketogenic diet and it's proven effective for children whose epilepsy does not respond to medication.
Omphalocele and Feeding Challenges: Eliana's Story
When Anna was 18 weeks pregnant, she discovered one of twins she was carrying had omphalocele, a rare, potentially life-threatening birth defect.
Concussion: Nicholas and Duckea's Story
Nicholas got his concussion playing ice hockey. Duckea got her concussion falling off her bike. Both teens were treated for their concussion symptoms at The Children’s Hospital of Philadelphia.
Goldenhar Syndrome & Von Willebrand Syndrome: Aidan's Story
Aidan was born with Goldenhar syndrome and Von Willebrand syndrome, two rare genetic conditions that need expert medical management. He receives care from The Children's Hospital of Philadelphia at CHOP Specialty Care Centers in New Jersey.
Papillary Thyroid Cancer: Emily's Story
Diagnosed with papillary thyroid cancer as a teen, Emily Stratton received treatment at CHOP's Pediatric Thyroid Center. Today, the 20-year-old is pursuing a career in nursing.