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Patient Stories

Our patients' stories

Patient story

Heterotaxy Syndrome: Ethan’s Story

After learning that their unborn baby had heterotaxy syndrome and CHD, Alison and Philip turned to The Children’s Hospital of Philadelphia for hope.

Patient story

Kidney Stones: Taylor's Story

After suffering through multiple kidney infections and failed treatments, Taylor’s family turned to CHOP’s specialized Pediatric Kidney Stone Center for answers.

Patient story

Chronic Lung Disease: Evan’s Story

After a year of intensive treatment, 14-month-old Evan Stickle is finally home. His family credits his turnaround to CHOP’s Newborn and Infant Chronic Lung Disease Program.

Patient story

Acetabular Dysplasia: Angeline’s Story

When hip pain sidelined Angeline Mays from field hockey, she sought help from the Young Adult Hip Preservation Program at The Children’s Hospital of Philadelphia.

Patient story

Arrhythmogenic Right Ventricle Dysplasia: Brett’s Story

At age 13, Brett was diagnosed with arrhythmogenic right ventricle dysplasia (ARVD). With the help of an implantable cardioverter defibrillator (ICD) and the support of his team at CHOP, Brett was able to return to the activities he loved.

Patient story

Type 1 Diabetes: Ana’s Story

In the 10 years since her diagnosis with type 1 diabetes, Ana had learned so much about herself and her accomplishments. She wrote down what this bittersweet, 10-year anniversary means to her.

Patient story

Cornelia de Lange Syndrome: Megan’s Story

As a child with Cornelia de Lange syndrome, little was known about how the disorder would affect Megan Ramsey’s long-term functioning, but she confronts every challenge with an indomitable spirit.

Patient story

Cornelia de Lange Syndrome: Connor’s Story

When Connor Feehan was diagnosed with Cornelia de Lange syndrome, his family learned that living with this disorder is about adapting, adjusting, and expecting the best. The Children’s Hospital of Philadelphia is helping them do that.

Patient story

Slipped capital femoral epiphysis: Zachary’s story

Diagnosed with slipped capital femoral epiphysis of the hip, 12-year-old Zachary faced life-long disability. Thanks to a specialized surgery available at The Children’s Hospital of Philadelphia, surgeons were able to restore Zachary’s normal hip anatomy, allowing him to regain his active lifestyle.

Patient story

Dilated Cardiomyopathy: Chris' Story

Chris was diagnosed with a dilated cardiomyopathy when he was 15 years old and underwent a successful heart transplant at CHOP.

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