Our patients' stories
Heterotaxy Syndrome: Ethan’s Story
After learning that their unborn baby had heterotaxy syndrome and CHD, Alison and Philip turned to The Children’s Hospital of Philadelphia for hope.
Kidney Stones: Taylor's Story
After suffering through multiple kidney infections and failed treatments, Taylor’s family turned to CHOP’s specialized Pediatric Kidney Stone Center for answers.
Chronic Lung Disease: Evan’s Story
After a year of intensive treatment, 14-month-old Evan Stickle is finally home. His family credits his turnaround to CHOP’s Newborn and Infant Chronic Lung Disease Program.
Hypertrophic Cardiomyopathy: Reid's Story
Reid was diagnosed with hypertrophic cardiomyopathy shortly after he was born and had a defibrillator implanted at age 12.
Hypoplastic Left Heart Syndrome: Ben's Story
Ben was born with hypoplastic left heart syndrome (HLHS) and underwent open heart surgery at CHOP's Cardiac Center.
Ben’s Story: Hypoplastic Left Heart Syndrome
Ben was born with hypoplastic left heart syndrome (HLHS) and underwent open heart surgery at CHOP's Cardiac Center. Watch his story.
LJ’s Story: Transposition of the Great Arteries
LJ was diagnosed before birth with transposition of the great arteries (TGA) and treated by CHOP's Fetal Heart Program. Watch his story.
Acetabular Dysplasia: Angeline’s Story
When hip pain sidelined Angeline Mays from field hockey, she sought help from the Young Adult Hip Preservation Program at The Children’s Hospital of Philadelphia.
Arrhythmogenic Right Ventricle Dysplasia: Brett’s Story
At age 13, Brett was diagnosed with arrhythmogenic right ventricle dysplasia (ARVD). With the help of an implantable cardioverter defibrillator (ICD) and the support of his team at CHOP, Brett was able to return to the activities he loved.
Type 1 Diabetes: Ana’s Story
In the 10 years since her diagnosis with type 1 diabetes, Ana had learned so much about herself and her accomplishments. She wrote down what this bittersweet, 10-year anniversary means to her.
Cornelia de Lange Syndrome: Megan’s Story
As a child with Cornelia de Lange syndrome, little was known about how the disorder would affect Megan Ramsey’s long-term functioning, but she confronts every challenge with an indomitable spirit.
Cornelia de Lange Syndrome: Connor’s Story
When Connor Feehan was diagnosed with Cornelia de Lange syndrome, his family learned that living with this disorder is about adapting, adjusting, and expecting the best. The Children’s Hospital of Philadelphia is helping them do that.
Cornelia de Lange Syndrome: Andrew’s Story
When Andrew was born with Cornelia de Lange syndrome, his family found medical help and support at Children’s Hospital of Philadelphia.
A second opinion for bilateral hip dysplasia surgery: Kendall’s story
Kendall Gulli was diagnosed with bilateral hip dysplasia (or developmental dysplasia of the hip) when she was 2 years old. Surgery at CHOP corrected her condition.
Slipped capital femoral epiphysis: Zachary’s story
Diagnosed with slipped capital femoral epiphysis of the hip, 12-year-old Zachary faced life-long disability. Thanks to a specialized surgery available at The Children’s Hospital of Philadelphia, surgeons were able to restore Zachary’s normal hip anatomy, allowing him to regain his active lifestyle.
Acetabular Dysplasia: Stephanie’s Story
Stephanie, a runner, was treated for acetabular dysplasia by Wudbhav N. Sankar, MD, at The Children's Hospital of Philadelphia.
Generalized Arterial Calcification of Infancy (GACI): Natalie's Story
While still in the womb, Natalie's heart was already clogged with calcium. Her parents knew it didn't look good. They sought help from national experts in fetal cardiac conditions at The Children's Hospital of Philadelphia.
Cardiomyopathy and Heart Transplant: Allison's Story
Thanks to a mechanical sidekick, Allison Carcella pioneered a safer path to a heart transplant at Children's Hospital of Philadelphia.
Dilated Cardiomyopathy: Chris' Story
Chris was diagnosed with a dilated cardiomyopathy when he was 15 years old and underwent a successful heart transplant at CHOP.
Idiopathic Scoliosis and Spinal Fusion: Jillian’s Story
Just one year after having spine surgery at The Children’s Hospital of Philadelphia to correct scoliosis, Jillian Payne was walking the runways as a professional model in New York City.