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Patient Stories

Our patients' stories

Patient story

SCID and Bone Marrow Transplant: Audrey’s Story

Audrey was diagnosed with severe combined immunodeficiency, treated with drugs to ward off infections, and underwent a bone marrow transplant at CHOP — all in her first month of life.

Patient story

Lesly’s Leap of Faith

When doctors discovered her unborn baby had an enormous tumor, Lesly moved cross-country in search of hope for her daughter. The PBS series TWICE BORN followed their journey.

Patient story

Type 1 Diabetes: Jordan’s Story

Even though Jordan has seen his dad and brother manage their type 1 diabetes for years, coping with his own diagnosis was overwhelming at times. He turned to his team at CHOP for help.

Patient story

Combination Lung Mass: Emma’s Story

Kelly Heffernan felt lost when a mass was discovered on her unborn daughter’s right lung. Here, she shares the story of how she and Emma Grace found their way to CHOP.

Patient story

Hemorrhagic Stroke: Nate’s Story

Before he was born, Nate suffered a hemorrhagic stroke that severely damaged his brain. Early intervention at Children’s Hospital of Philadelphia started him on a journey to healing.

Patient story

Cystic Fibrosis: Angela’s Story

Watching Angela DeStasio glide across the dance floor, you’d never suspect she has cystic fibrosis. Learn how she manages her disease so that she can continue to do what she loves.

Patient story

This Is Zion: One Year Later

Watch this inspiring one-year update on Zion Harvey, the recipient of the first bilateral hand transplant in a child.

Caption

Soroosh Mahboubi, MD, FACR

Patient story

Autism Spectrum Disorder: Braylen’s Story

Braylen Clayton was diagnosed with autism spectrum disorder at age 2. Today, he is a 7-year-old who loves reading and playing with friends, thanks to intensive teamwork between his parents and experts at CHOP's Center for Childhood Communication and Autism Integrated Care program.

Patient story

Scoliosis: Courtney’s Story

At the age of 12, Courtney was diagnosed with scoliosis. By the time she turned 17, she needed surgery. Dr. Sankar performed a posterior spinal fusion with instrumentation that allowed Courtney to get back to dancing and compete nationally eight months after surgery.

James
Patient story

B-cell Lymphoma: James’ Story

James was diagnosed with B-cell lymphoma soon after beginning his junior year of high school. On Sept. 25, he and his team, the Bald Eagles, will join the Parkway Run & Walk to help raise money for pediatric cancer research at CHOP.

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Lauren VonHoltz, MD, MPH

Patient story

Lymphoblastic Lymphoma: Emily’s Story

Emily was diagnosed with lymphoblastic lymphoma and received treatment at CHOP. Emily’s team will join the Parkway Run & Walk on Sept. 25 to raise money for pediatric cancer care and research at CHOP.

Patient story

Ewing Sarcoma: Anthony’s Story

Anthony’s story started with a simple lump on his head. Then came a shocking diagnosis, two surgeries, 14 rounds of chemotherapy, and weeks in the hospital.

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Lindsay E. Gilmore, MD

Patient story

Acute Lymphoblastic Leukemia: Megan’s Story

Megan had acute lymphoblastic leukemia when she was 13 — and when she was 19, it came back. Her treatment included an experimental drug that could be administered at home with the help of CHOP’s Home Care nurses.

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Daria Murosko, MD, MPH

Patient story

Acute Lymphoblastic Leukemia: Conall’s story

In 2015, the now 6-year-old Conall went into septic shock, a result of underlying leukemia and a strep infection. A year-and-a-half later, he’ll be walking on new legs as a Patient Ambassador during CHOP's 2016 Parkway Run & Walk.

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