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Patient Stories

Our patients' stories

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Lauren VonHoltz, MD, MPH

Patient story

Lymphoblastic Lymphoma: Emily’s Story

Emily was diagnosed with lymphoblastic lymphoma and received treatment at CHOP. Emily’s team will join the Parkway Run & Walk on Sept. 25 to raise money for pediatric cancer care and research at CHOP.

Patient story

Ewing Sarcoma: Anthony’s Story

Anthony’s story started with a simple lump on his head. Then came a shocking diagnosis, two surgeries, 14 rounds of chemotherapy, and weeks in the hospital.

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Lindsay E. Gilmore, MD

Patient story

Acute Lymphoblastic Leukemia: Megan’s Story

Megan had acute lymphoblastic leukemia when she was 13 — and when she was 19, it came back. Her treatment included an experimental drug that could be administered at home with the help of CHOP’s Home Care nurses.

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Daria Murosko, MD, MPH

Patient story

Acute Lymphoblastic Leukemia: Conall’s story

In 2015, the now 6-year-old Conall went into septic shock, a result of underlying leukemia and a strep infection. A year-and-a-half later, he’ll be walking on new legs as a Patient Ambassador during CHOP's 2016 Parkway Run & Walk.

Patient story

Hypothalamic/Optic Pathway Glioma NF1: Abby’s Story

When Abby was a toddler, she was diagnosed with a disorder that causes tumors and has been receiving treatments at CHOP. Abby is a Patient Ambassador for the 2016 Parkway Run & Walk. Read about her amazing efforts to help other kids undergoing chemotherapy.

Patient story

Osteosarcoma: Catrina’s Story

A childhood cancer survivor, Catrina was diagnosed with a second cancer, osteosarcoma, during her freshman year in high school. CHOP was once again there for her as she underwent a major surgery to reconstruct her jaw. Catrina was a Patient Ambassador for the 2016 Parkway Run & Walk.

Patient story

Intracranial Germinoma: Aaron’s Story

In 2015, 17-year-old Aaron was diagnosed with two brain tumors. Despite a cancer diagnosis, he managed to stay on track at school and receive his diploma in June. 

Patient story

Lymphoblastic Lymphoma: Jaiden’s Story

Jaiden was diagnosed with lymphoma and has been receiving his outpatient treatments at CHOP’s Specialty Care and Surgery Center in Voorhees, NJ. He will be a Patient Ambassador during the 2016 Parkway Run & Walk.

Max
Patient story

Acute Lymphoblastic Leukemia: Max’s story

A lingering cold and a strange pattern of leg bruises prompted Max's parents to take him to The Children's Hospital, where the 4-year-old was diagnosed with acute lymphoblastic leukemia and began a long treatment regimen that included 10 hospital stays.

Patient story

Spina Bifida: No Match for Miah

After learning their unborn daughter had myelomeningocele, the most severe form of spina bifida, Miah’s parents turned to CHOP for care that would allow her to thrive.

Emily Patient
Patient story

HNF1A-hyperinsulinism: Eimy's Story

Eimy was diagnosed with a newly recognized type of HI, a transient form called HNF1A-hyperinsulinism. Treatment for HNF HI can be tricky as the “just right” dose of diazoxide continues to fluctuate as children grow.

Patient story

NLRC-4 Mutation: Olivia’s Story

Jill DiStefano shares her family’s story of heartbreak and hope when they learned daughter Olivia had a rare genetic mutation of NLRC-4 — one that only a few children in the world have. Thankfully, a team of CHOP specialists were able to unlock the mystery about how best to care for this little girl.

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Kisha Hortman Hawthorne, PhD, FACHE

Patient story

Paul’s Road to Recovery after Hemorrhagic Stroke

Years of rehabilitation therapy at CHOP’s Seashore House combined with his parents' dedication to his education have fueled Paul’s progress since suffering a hemorrhagic stroke.

Patient story

Adapting After Stroke: Bryan’s Story

Bryan has come a long way since he was in a wheelchair and unable to speak after suffering a stroke. Learn how Bryan and his family are adapting along the road to recovery.

Patient story

Biliary Atresia and Liver Transplant: Mya's Story

When Mya was an infant, her parents, Lissa and Jeff, learned she had biliary atresia and would eventually need a liver transplant. Here, Lissa shares the story of her daughter’s journey to a transplant at CHOP.

Patient story

Genetic Predisposition to Cardiomyopathy: The Moran Family’s Story

It all started when Joy told her mom, Heather, that she was having chest pains. Heather’s family history of hypertrophic cardiomyopathy prompted her to schedule an appointment at the Cardiac Center, where both Joy and her sister, Ryann, were found to have the gene for cardiomyopathy

Patient story

Very Early Onset IBD: Jacob's Story

Jacob's family took him to different doctors, looking for help for their very sick baby. They finally found answers, and life-changing treatment, at Children's Hospital of Philadelphia.

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