Our patients' stories
Tracheostomy and Decannulation: Steven’s Story
Steven came in to the world facing more challenges than most people face in a lifetime, but after 35 medical procedures and 12 major surgeries by CHOP specialists, the 12-year-old is thriving.
Sacrococcygeal Teratoma (SCT): Emoni’s Story
Emoni’s family relocated from Atlanta to be near Children’s Hospital of Philadelphia so she could get the expert care she needed immediately after birth.
Heart Transplant: Katrina’s Story
After a heart transplant at 9 weeks old, Katrina is now a busy college student and a fierce advocate for organ donation.
Transposition of the Great Arteries: Lily’s Story
Lily was only a week old when CHOP corrected her condition called transposition of the great arteries (TGA). Now she’s an active and caring 7-year-old.
Finding Hope Far from Home: Ali’s Story
When 6-year-old Ali became seriously ill for the second time, his family believed only one place in the world could offer him the best care — Children’s Hospital of Philadelphia.
Duplex Kidney with Vesicoureteral Reflux: Miles’ Story
Miles was born with malformed ureters, putting his kidneys at risk of infection. The medical team at CHOP treated him with antibiotics until he was ready for the surgery that cured him.
Inflammatory Bowel Disease: Brandon’s Story
Brandon ate his first real meal at age 17 — after a stem cell transplant to cure a rare genetic disease that had afflicted him throughout his childhood.
Rare Genetic Disease (NLRC-4): Olivia’s Story
Two-year-old Olivia, born with a rare genetic disease, beat the odds, thanks to a clinical trial at Children's Hospital of Philadelphia (CHOP).
Conjoined Twins: Amelia and Allison’s Story
Amelia and Allison were born as conjoined twins, connected at the chest and abdomen. Surgery at Children’s Hospital of Philadelphia separated them.
Repairing Severed Tendons: Matthew’s Story
Five days before Matthew started college, an accident with a miter saw caused serious injury to his arm and almost cut short his freshman year.
A Surprising Cause of Hearing Loss: Hannah’s Story
Hannah's failed hearing test led her doctor to discover she had enlarged adenoids. They were removed during outpatient surgery at a CHOP Surgery Center in King of Prussia.
Sand Drowning: Edgar’s ECMO Story
A day at the beach turned into a nightmare when a sand cave collapsed on Edgar. He was rushed to CHOP where a world-renowned ECMO team saved his life.
Heart Transplant: Tyler’s Story
Tyler was born with hypoplastic left heart syndrome, a complex congenital heart defect. After a heart transplant, the 5-year-old is thriving.
Thoracic Insufficiency Syndrome: Arwa's Story
Mubarak and Khairiah Alqahtani traveled from Saudi Arabia to seek lifesaving care at Children's Hospital of Philadelphia for their 18-year-old daughter, Arwa, who suffered from a rare disease.
Cystic Fibrosis: Abby’s Story
Since Abby was just a few weeks old, her medical team at Children’s Hospital of Philadelphia’s Cystic Fibrosis Center has focused on keeping her healthy and growing.
Hemiplegic Migraine: Claire’s Story
When Claire was 5, she mysteriously slipped into a coma and no one could figure out why. Doctors at Children’s Hospital of Philadelphia discovered the cause: a hemiplegic migraine.
Gastroschisis: Paloma’s Story
Diagnosed with gastroschisis before she was born, 15-year-old Paloma has gone on to share her talents with the world, whether on the track, the stage, or in the classroom.
Type 1 Diabetes: Joe’s Story
In the 14 years since his diagnosis with type 1 diabetes, Joe has learned to embrace his condition. He has positive message for everyone living with diabetes.
Arterial Ischemic Stroke: Jacob’s Story
Jacob suffered a stroke when he was 2, and his parents were told he might never walk normally again. Now 7, he plays baseball, soccer, basketball and tennis.
Lymphatic Leaks: Gracie’s Story
Her health failing a year ago due to a leak in her lymphatic system, Gracie is now a happy, healthy 5-year-old who loves ballet and gymnastics.