Our patients' stories

Crohn’s Disease: Gavin and Hudson’s Story
Gavin and Hudson have their Crohn’s disease under control thanks to a nutrition study at Children’s Hospital of Philadelphia’s Center for Pediatric IBD.

Legg-Calve-Perthes disease: Andrew’s story
Severe hip pain from a rare condition sidelined Andrew Luke from the sports he loved but specialized surgery by CHOP and Penn orthopedic surgeons put him back in the game.

Congenital Diaphragmatic Hernia: Milana’s Story
Upon learning their unborn child had CDH, the Porosoff family traveled from Florida for care at CHOP's Center for Fetal Diagnosis & Treatment.

Single Ventricle Heart Defect and Chylothorax: Emmett’s Story
Emmett, 1, is a cheerful baby. Treatment from Children’s Hospital of Philadelphia is helping him overcome a single ventricle heart defect and chylothorax.

Chronic Granulomatous Disease (CGD) and Bone Marrow Transplant: Luke’s Story
Luke, 5, is progressing well after treatment for a rare disease and a bone marrow transplant at Children’s Hospital of Philadelphia.

Ulcerative Colitis: David’s Story
David experienced unpleasant side effects from two of his treatments for colitis, but his medical team at Children’s Hospital responded each time with new approaches to his care.

Crohn’s Disease and Turner Syndrome: Abigail’s Story
Children’s Hospital of Philadelphia has helped Abigail, 22, manage her Crohn’s disease and Turner syndrome for more than 18 years.

Crohn’s Disease: Titus’ Story
Titus, 8, was sick and barely eating when he arrived at Children’s Hospital of Philadelphia. Treatment for his Crohn’s disease has turned his health around.

Ulcerative Colitis: Shea’s Story
Shea loves cheerleading and today has energy to spare for it, since the IBD team at Children's Hospital of Philadelphia has her ulcerative colitis under control.
New Type of Ear Reconstruction: Alexis’ Story
An innovative reconstruction surgery at Children's Hospital of Philadelphia gave Alexis a new ear. The ability to hear from the reconstructed ear will soon follow.

Concussion: Sydney’s Story
Sydney suffered from a serious concussion while playing soccer. Thanks to Children’s Hospital of Philadelphia, she has clinically recovered.

Cardiomyopathy and Heart Transplant: Joe’s Story
Joe had a near-fatal incident from cardiomyopathy. He was back on the soccer field six months after a heart transplant at Children’s Hospital of Philadelphia.

Crohn’s Disease: Kristen’s Story
After a long battle, Kristen’s symptoms from Crohn’s disease are under control. She is a thriving young adult thanks to Children’s Hospital of Philadelphia.

Crohn’s Disease: Emily’s Story
Emily is an energetic teenager. She’s able to better enjoy her passions like acting thanks to treatment for her Crohn’s at Children’s Hospital of Philadelphia.

Congenital Diaphragmatic Hernia: Wesley’s Story
When Wesley was diagnosed with a congenital diaphragmatic hernia, his family relocated from New York to Philadelphia to find the expert care he needed to survive.

Crohn’s Disease: Sydney’s Story
Sydney is an energetic and well-rounded 10-year-old. Thanks to nutrition therapy at Children’s Hospital of Philadelphia, her Crohn’s disease is under control.

Crohn’s Disease: David’s Story
David came to CHOP as a teen to manage his Crohn’s. His parents now co-chair the Family Research Council, which supports research at the IBD Center.

Cystic Fibrosis: Jessica’s Story
Jessica has lived with cystic fibrosis since she was a baby. The Cystic Fibrosis Center at CHOP prepared her to manage her disease as she transitioned to college.
Very Early Onset IBD and Eosinophilic Esophagitis: Thomas’ Story
Thomas does karate and loves Lego robotics. With medication and a careful diet, he’s living an active life with IBD.

Crohn’s Disease: Matthew’s Story
Matthew’s problem was a mystery until he came to Children’s Hospital. After a diagnosis of Crohn’s, nutrition treatment has Matthew, 3, eating normally and thriving.