Our patients' stories
Resistance to Eating New Foods: Shane and Nicholas’ Story
Twins, Shane and Nicholas, used to resist eating new foods. Now 3, they’re eating a variety of foods thanks to the Pediatric Feeding and Swallowing Center.
Pulmonary Hypertension: Emma’s Story
Emma, 9, has the energy to swim, dance and participate in the activities she loves thanks to the Pulmonary Hypertension Program at Children's Hospital of Philadelphia.
Selective Intrauterine Growth Restriction: Hattie and Nora’s Story
Twins Hattie and Nora were diagnosed with selective intrauterine growth restriction (sIUGR) before they were born, and monitored at Children’s Hospital of Philadelphia.
Chewing and Swallowing Problems: Noah’s Story
Noah, 4, used to have serious problems with chewing and swallowing solid food. Now he’s eating a balanced diet and is on track to be feeding himself.
Crohn’s Disease and Turner Syndrome: Laney’s Story
Laney has been living with both Turner syndrome and Crohn’s disease since she was a toddler. Thanks to Children’s Hospital, she is a thriving 11-year-old.
Fear of Eating Solid Foods: Gracie’s Story
The Martha Escoll Lubeck Feeding and Swallowing Center at Children’s Hospital of Philadelphia has helped Gracie overcome her fear of eating solid foods.
Pulmonary Hypertension: Emma’s Story
Emma has her complex heart problems, including pulmonary hypertension, under control thanks to the Cardiac Center at Children’s Hospital of Philadelphia.
Leukodystrophy: Chloe’s Story
After years of searching, Chloe’s family found support at Children’s Hospital of Philadelphia, where doctors identified the cause of her rare form of leukodystrophy.
Chylothorax: Tayvin’s Story
An innovative interventional procedure sealed the leaks in Tayvin’s lymphatic system. Weeks later, he was back to his favorite outdoor activities.
Hypertrophic Cardiomyopathy: Jake and Tyler’s Story
A cardiac program enabled brothers to learn they were at risk of a genetic heart condition. Recommended lifestyle changes could save their lives.
Heterotaxy Syndrome and Lymphatic Intervention: Carl’s Story
Carl, 4, is energetic again after treatment from the Cardiac Center at Children’s Hospital of Philadelphia to address his lymphatic complications.
Donor Story: Patrice and Irv Rubin
Patrice and Irv Rubin are pet owners who supporters of animal charities and CHOP. When it came time to put their affairs in order, they decided to split their estate between Children's Hospital of Philadelphia’s Gerald B. Schrieber Pet Therapy Program and the Bucks County SPCA.
Donor Story: Esha Bhatia
A fulfilling career at Children's Hospital of Philadelphia and a dedication to CHOP's mission led Esha Bhatia to make the Hospital part of her legacy as the beneficiary of her IRA.
Donor Story: John DeMaio, MD
As a resident physician at CHOP, Dr. John DeMaio spent the quiet periods at night playing with children who couldn't sleep. Now, years later, his estate planning will help the Child Life, Education and Creative Arts Therapy Department continue to help children play, cope and heal.
Postaxial polydactyly (extra pinky finger): Kaylee’s story
Kathryn and Brian learned at their 20 week ultrasound that their baby daughter had 10 perfect fingers — plus one more.
Brachial plexus birth palsy, humeral osteotomy: Mariah's story
Mariah favored her left arm when she played basketball due to a birth nerve injury to her right arm. Surgery by a CHOP orthopedic surgeon restored her range of motion and made her a double threat.
Cystic Fibrosis: Zak’s Story
Zak, 9, is more organized than most adults, managing his daily medicines and therapies to treat his cystic fibrosis and CF-related diabetes.
Closed Reduction Procedure for Developmental Dysplasia of the Hip: Elise’s Story
After two different braces failed to correct Elise's hip dysplasia, she underwent hip surgery at CHOP and spent 12 weeks in a spica cast.
Early-onset Scoliosis in an Infant: Tristan’s Story
Diagnosed with early-onset scoliosis at 5 months old, Tristan was treated with serial body casting, an innovative therapy that gradually straightens spinal curves.
Pediatric Stroke: Chase’s Story
Chase suffered a massive stroke when he was 7. Surgery followed by therapy with CHOP’s Pediatric Stroke Program helped him regain most of his mobility.