Our patients' stories
Two Children, Two Very Different Breastfeeding Experiences
When her second son, Kaashif, was born with medical issues that prevented him from feeding at the breast, Alissa found new ways to approach feeding.
CAR T-Cell Therapy for Relapsed Leukemia: Paulina’s Story
Frantic to save Paulina’s life, her family brought her to the Cancer Center at CHOP where an experimental trial of CAR T-cell therapy cured her cancer.
Mitochondrial Disease: Juliet's Story
Juliet is the first patient in the world to be diagnosed with a rare form of mitochondrial disease. The breakthrough discovery led to the diagnosis of 80 additional patients worldwide.
Heart and Lung Transplant: Riley’s Story
As one of a handful of children in the world who have had a heart and double lung transplant, Riley's journey to recovery is remarkable.
Cerebral palsy hand surgery: Lucas’s story
For the first 10 years of his life, Lucas had limited use of his right hand due to cerebral palsy. A surgery at CHOP gave him the mobility and flexibility that Lucas had always hoped for.
Finger Reconstruction: Caleb’s Story
Caleb can now catch a ball with both hands, ride a bike and button up his own shirt, thanks to a series of reconstructive hand surgeries at CHOP to reduce scar tissues that limited his hand’s movement.
Congenital Pseudoarthrosis of the Clavicle: Harper’s Story
Harper was born with a rare defect in her right collarbone. Surgery at CHOP corrected the condition. Today, Harper is a thriving, active toddler who loves to run, climb and shoot hoops.
Hirschsprung’s Disease: Luke's Story
Luke was diagnosed with Hirschsprung’s disease when he was just three 3 days old, and underwent surgery to remove the affected part of his colon at Children’s Hospital of Philadelphia.
Fetal Surgery for Spina Bifida: Scout’s Story
The Watkins family traveled from Florida to Children’s Hospital of Philadelphia so that their unborn baby girl, Scout, could have fetal surgery for spina bifida.
Giant Omphalocele: Jameson's Story
When Jameson was diagnosed with giant omphalocele before birth, the positive attitude of the team at CHOP made his parents feel much better about the journey ahead.
Double Outlet Right Ventricle (DORV): Michael's Story
Michael, 3, had a series of heart surgeries at Children’s Hospital of Philadelphia (CHOP) to correct a rare heart defect: double outlet right ventricle.
Trisomy 21: Kate’s Story
Kate, 18, doesn’t let anyone stop her. Born with Down syndrome, she is a member of the National Honor Society, a cheerleader, and a volunteer at a local food bank.
Honoring Kayla’s Legacy
Kayla’s parents founded a nonprofit and have raised more than $1 million for pediatric brain tumor research at CHOP.
Motility Disorder: Arianna’s Story
Arianna, 21, has been treated her entire life for Down syndrome (trisomy 21), autism and motility disorders. Her medical team at CHOP has worked closely with her family to effectively treat her motility disorder to bring her comfort.
Motility Disorder: Grace and Gabriel’s Story
Grace and Gabriel, 14, have had motility problems their entire lives. Treatment has reduced their discomfort, allowing them to pursue their passions.
Severe Chronic Lung Disease with Associated Pulmonary Hypertension: Taylor’s Story
Born 13 weeks premature, Taylor is now a happy toddler, thanks to expert care and innovative treatment for severe chronic lung disease at CHOP.
Tetralogy of Fallot (TOF): Mason's Story
Mason was born with tetralogy of Fallot (TOF) and had surgery at just 5 days old to repair his heart. Today, he is a happy and active toddler.
Alveolar Capillary Dysplasia and Lung Transplant: Luca’s Story
Luca had to receive a lung transplant at just 5 months old to save his life. Now, he’s a thriving baby thanks to Children’s Hospital of Philadelphia.
Pulmonary Hypertension and Transposition of the Great Arteries: Cole’s Story
Cole, 12, is able to treat his pulmonary hypertension with oral medications thanks to a clinical trial at Children’s Hospital of Philadelphia.
Coarctation of the Aorta: Christopher’s Story
Christopher had heart surgery to correct his coarctation of the aorta when he was just 6 months old. Today, he’s getting ready to start kindergarten.