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Patient Stories

Our patients' stories

Patient story

Celiac Disease: Shane's Story

Shane, 9, and his family have adapted to a gluten-free lifestyle after his diagnosis of celiac disease at Children’s Hospital of Philadelphia.

Patient story

Celiac Disease: Jared's Story

Jared has been gluten-free for 9 years. He credits the Center for Celiac Disease for their education and support in helping him manage his celiac disease.

Patient story

Plastic Bronchitis: John's Story

John, 6, had an innovative procedure to seal the leaks in his lymphatics system. Today, he has the energy to be active and play sports

Patient story

Sepsis: Hannah's Story

An infection sent Hannah to intensive care with sepsis, a life-threatening condition. Thanks to the Pediatric Sepsis Program at CHOP, she has recovered.

Patient story

Ulcerative Colitis: William’s Story

William manages his ulcerative colitis with medication and nutrition. With his condition under control, he has the energy to be a competitive gymnast.

Patient story

Hydronephrosis: Maddie's Story

After an unexpected diagnosis of hydronephrosis at 17, Maddie had surgery to remove her kidney at Children’s Hospital of Philadelphia.

Patient story

Chylothorax: Paisley's Story

After surgery, an innovative interventional procedure at the Jill and Mark Fishman Center for Lymphatic Disorders stopped Paisley’s lymphatic leaks.

Patient story

Ulcerative Colitis: Noah's Story

When Noah was 11, ulcerative colitis drained his energy and threatened his life. Now 15, he has the energy and stamina to play on a basketball team.

Patient story

Heart Transplant: Amber’s Story

Amber received a new heart at Children’s Hospital of Philadelphia. After years of poor health, she’s now enjoying an active life again.

Patient story

Atrial Septal Defect: Jacob's Story

Jacob, 16, is able to play sports at a high level thanks to the team at Children’s Hospital of Philadelphia, where he had heart surgery three years ago.

Patient story

Mitochondrial Disease: Patrick's Story

Patrick is cared for at Children’s Hospital of Philadelphia for mitochondrial disease. His parents have become committed supporters of research.

Patient story

Mitochondrial Disease: Lincoln's Story

Specialists at Children’s Hospital of Philadelphia diagnosed Lincoln, 5, with mitochondrial disease and constantly personalize his care. 

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