Our patients' stories
Brachial Plexus Birth Palsy, Occupational Therapy and Natural Recovery: April's Story
April suffered an injury to the brachial plexus nerves during birth. Her parents’ commitment to occupational therapy helped her gain the strength she needed to avoid surgery.
Celiac Disease: Shane's Story
Shane, 9, and his family have adapted to a gluten-free lifestyle after his diagnosis of celiac disease at Children’s Hospital of Philadelphia.
Hypoplastic Left Heart Syndrome: Jeremy's Story
Jeremy was born with hypoplastic left heart syndrome (HLHS). After a series of three reconstructive surgeries, he’s now an outgoing 5-year-old.
Celiac Disease: Jared's Story
Jared has been gluten-free for 9 years. He credits the Center for Celiac Disease for their education and support in helping him manage his celiac disease.
Plastic Bronchitis: John's Story
John, 6, had an innovative procedure to seal the leaks in his lymphatics system. Today, he has the energy to be active and play sports
Sepsis: Hannah's Story
An infection sent Hannah to intensive care with sepsis, a life-threatening condition. Thanks to the Pediatric Sepsis Program at CHOP, she has recovered.
Ulcerative Colitis: William’s Story
William manages his ulcerative colitis with medication and nutrition. With his condition under control, he has the energy to be a competitive gymnast.
Tetralogy of Fallot and Complete Atrioventricular Canal: Katie’s Story
Katie, 12, has overcome many health-related obstacles and faces more ahead. She has the support of her family and her medical team at CHOP.
Coarctation of the Aorta: Olivia’s Story
When Olivia was just 4 days old, she had open-heart surgery to repair her coarctation of the aorta, a congenital heart disease.
Hydronephrosis: Maddie's Story
After an unexpected diagnosis of hydronephrosis at 17, Maddie had surgery to remove her kidney at Children’s Hospital of Philadelphia.
Chylothorax: Paisley's Story
After surgery, an innovative interventional procedure at the Jill and Mark Fishman Center for Lymphatic Disorders stopped Paisley’s lymphatic leaks.
Ulcerative Colitis: Noah's Story
When Noah was 11, ulcerative colitis drained his energy and threatened his life. Now 15, he has the energy and stamina to play on a basketball team.
Twin-Twin Transfusion Syndrome: Shea and Vale’s Story
Identical twins Vale and Shea were diagnosed before birth with twin-twin transfusion syndrome (TTTS), and underwent fetoscopic laser ablation at CHOP.
Heart Transplant: Amber’s Story
Amber received a new heart at Children’s Hospital of Philadelphia. After years of poor health, she’s now enjoying an active life again.
Interruption of the Aortic Arch: Beyah’s Story
Beyah, 2, has come a long way since having lifesaving open-heart surgery at Children’s Hospital of Philadelphia when she was just a few days old.
Prenatal Surgery for Spina Bifida: Avery’s Story
After learning her unborn daughter, Avery, had spina bifida, Katie traveled from Maryland to have prenatal surgery at Children’s Hospital of Philadelphia.
Transitioning to Adult Cystic Fibrosis Care: Devon’s Advice
CHOP’s Cystic Fibrosis Center was like a second home for Devon growing up. Now 21, she offers advice to other CF patients making the transition to adult care.
Atrial Septal Defect: Jacob's Story
Jacob, 16, is able to play sports at a high level thanks to the team at Children’s Hospital of Philadelphia, where he had heart surgery three years ago.
Mitochondrial Disease: Patrick's Story
Patrick is cared for at Children’s Hospital of Philadelphia for mitochondrial disease. His parents have become committed supporters of research.
Mitochondrial Disease: Lincoln's Story
Specialists at Children’s Hospital of Philadelphia diagnosed Lincoln, 5, with mitochondrial disease and constantly personalize his care.