Our patients' stories
Sickle Cell Disease: Caylin’s Story
Now 12, Caylin’s regular visits to CHOP for sickle cell disease treatment have inspired her love for comparing numbers, gathering data and experimenting.
Coarctation of the Aorta with Aortic Arch Hypoplasia: Jude’s Story
Jude, 2, was born with coarctation of the aorta with aortic arch hypoplasia. Procedures at Children’s Hospital of Philadelphia helped save his life.
Yoga for Cancer Coping: Lucas’ Story
As Lucas undergoes chemotherapy, he uses yoga to stay calm, offered as part of the Integrative Health Program at Children’s Hospital of Philadelphia.
Spinal Muscular Atrophy Treatment: Claire’s Story
With a breakthrough drug for spinal muscular atrophy treatment and ongoing therapy at Children’s Hospital of Philadelphia, Claire is reaching new milestones.
Crohn’s Disease: Ella’s Story
After years of pain and stilted growth due to her then-undiagnosed Crohn's disease, Ella is now receiving treatment, and growing taller and stronger.
Specialized Treatment for Amplified Musculoskeletal Pain Syndrome: Sebastian’s Story
After six months of debilitating pain and countless doctor visits, Sebastian is now thriving — thanks to expert care from the AMPS team at Children's Hospital of Philadelphia.
Celiac Disease: Mikayla’s Story
Mikayla, 16, is a competitive gymnast and coaches younger children. Diagnosed with celiac disease in eighth grade, she has adapted to her new diet.
Prenatal Testing for Cystic Fibrosis: Shane’s Story
Genetic testing showed a 1 in 4 chance that Jessica and Greg’s son would have cystic fibrosis. A sweat test after he was born confirmed the diagnosis.
Crohn’s Disease: Zachary’s Story
Nutritional therapy proved to be the key to treating Zachary’s Crohn’s disease and eventual remission. Now 18, he’s looking ahead to college symptom-free.
Mariella's Congenital Cystic Adenomatoid Malformation (CCAM) Story
Before Mariella was born, doctors found a life-threatening cyst: a congenital cystic adenomatoid malformation. Her family turned to CHOP for lifesaving care.
Crohn’s Disease: Jillian’s Story
After treatment for Crohn’s disease at Children’s Hospital of Philadelphia, Jillian has resumed competitive dancing and hopes to pursue a nursing career.
Crohn’s Disease: Paige’s Story
After being diagnosed and treated for inflammatory bowel disease (IBD), Paige is now growing, thriving and dancing competitively.
Cystic Fibrosis: Brooklyn's Story
Brooklyn has been treated at Children's Hospital of Philadelphia's Cystic Fibrosis Center since she was diagnosed with cystic fibrosis at 3 months old.
Fetal Surgery for Spina Bifida: Elliana's Story
Elliana and her mom, Nicole, traveled from Michigan to Philadelphia to have fetal surgery for myelomeningocele, the most serious form of spina bifida.
Acute Lymphoblastic Leukemia: Nate’s Story
Nate was diagnosed with acute lymphoblastic leukemia just before he turned 4. Now 7, he’s completed chemotherapy and enjoying a new hobby: skateboarding.
Type 1 Diabetes: Dillon’s Story
With treatment and diligent attention to his health, Dillon is able to manage his type 1 diabetes while playing baseball at the highest level.
Employee Story: Training Tomorrow's Nurse Leaders Today
As soon as Maggie McGrath, a nurse in the Oncology Clinic, heard about the Professional Excellence & Advancing Knowledge (PEAK) program, she was inspired to develop her training and applied to the program with the support of her manager.
Tetralogy of Fallot (TOF): Mac's Story
After becoming the first patient in the Philadelphia region to receive an innovative replacement heart valve, Mac is enjoying life.
Ventricular Septal Defect (VSD): David's Story
David had heart surgery as a baby to correct his ventricular septal defect (VSD). Now 16, he's an athletic kid with a special passion for hockey.
Autism: Anthony's Story
Diagnosed with autism as a toddler, 19-year-old Anthony is learning the skills he needs to work and live independently.