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Patient Stories

Our patients' stories

Patient story

Lifesaving Care for HLHS: Thomas’ Story

Born with hypoplastic left heart syndrome, Thomas had a 50% chance of making it to his first reconstructive heart surgery. CHOP helped him beat those odds.

Patient story

Health and Well-being Clinic: Londyn's Story

The medication to calm Londyn’s asthma caused steady weight gain. Now a patient of CHOP’s Health and Well-being Clinic, the 12-year-old found a passion for exercise. 

Patient story

Addison’s disease: Chase’s story

Before CHOP’s diagnosis and treatment for adrenal insufficiency, Chase struggled with low energy. Now he dreams of coaching pro football

Patient story

Alexandria’s Story: Burr Hole Hemispherotomy for Seizures Caused By Perinatal Stroke

Alexandria was born at Pennsylvania Hospital, the nation’s first hospital, located in downtown Philadelphia. Everything seemed fine just after her C-section delivery, but within 24 hours of her birth, her mother, Kacy, noticed Alexandria’s eye twitching. She pointed it out to a nurse who brought in a neonatologist to evaluate the newborn. The neonatologist said the twitch was, in fact, a seizure.

Patient story

Synovial Sarcoma: Callan’s Story

Many oncology programs declared Callan’s rare tumor, located in his chest, inoperable. CHOP offered a comprehensive treatment plan that successfully removed the tumor.

Patient story

Anna’s Story: Playing a Role in Research Advances for Friedreich’s Ataxia

Since their first experience at CHOP in 2015, Anna’s parents have felt welcomed and supported by the team in CHOP’s Friedreich’s Ataxia Program. Team members go out of their way to make their daughter feel comfortable and cared for, and they have a sincere commitment to providing care that takes the whole child into account.

Patient story

Aaron’s Story: Surgery, Chemotherapy and Stem Cell Transplant for Medulloblastoma

When Aaron was 4, he was suddenly diagnosed with a brain tumor and had to undergo seven months of arduous treatment. His family will never forget the teams in neurosurgery, oncology, nursing and child life — and the Phillies and their South Jersey community — all of whom lifted Aaron up throughout his journey at CHOP.

Patient story

Isaiah’s Story: Management of Congenital Nephrotic Syndrome

Isaiah was born with congenital nephrotic syndrome, the same genetic mutation that caused his older brother to die in infancy. Isaiah’s improved experience and outcome showcases how multiple departments at CHOP work together to ensure the best patient and family care. 

Patient story

DICER1 Syndrome: Ellie’s Story

With a genetic disorder that increases her risk of developing tumors, Ellie is seen regularly at the Cancer Predisposition Program.

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