Our patients' stories
Lymphatic Leaks: Georgia's Story
After a serious accident in Montana, Georgia, 10, was sent to Children's Hospital of Philadelphia for a life-saving lymphatic procedure.
Acute Liver Failure and Liver Transplant: Budd’s Story
When he was 14, Budd was close to death because of acute liver failure. A liver transplant at Children’s Hospital of Philadelphia saved his life.
Tajh’s Story: Medical and Surgical Treatment of Myasthenia Gravis
When medicine alone couldn’t successfully control Tajh’s myasthenia gravis symptoms, surgery to remove his thymus offered the best chance of remission.
Down Syndrome and Alopecia: Rosie’s Story
Rosie was born with Down syndrome and later developed alopecia (hair loss), and she doesn’t try to hide her differences — she embraces them.
Down Syndrome and Heart Disease: Regan’s Story
Now 18 months old, Regan is a happy, silly baby who enjoys playing peekaboo, looking in the mirror and snuggling her baby doll.
Scoliosis: Kate & Emma's Story
Sisters Kate and Emma Fair were diagnosed with a rapidly advancing scoliosis, but their family found treatment, support, and a path toward recovery close to home.
Juvenile Myelomonocytic Leukemia (JMML): Kaleo’s Story
Kaleo was diagnosed with juvenile myelomonocytic leukemia (JMML), a very rare form of cancer. One year after a bone marrow transplant, Kaleo is cancer-free.
Type 1 Diabetes: Brayden and Lexi
Siblings Brayden and Lexi have been diagnosed with type 1 diabetes. They both live active lives with help from Children’s Hospital of Philadelphia.
Nephrotic Syndrome: Tyler and Jaxon’s Stories
Tyler, 7, and Jaxon, 4, both have a rare genetic kidney disorder. With help from Children’s Hospital of Philadelphia, there’s no holding them back.
Tetralogy of Fallot: Fiona's Story
Fiona, 7, has an active lifestyle thanks to surgeries she’s received at Children’s Hospital of Philadelphia to correct a serious heart problem – TOF.
Mitochondrial Disease and Eosinophilic Esophagitis: Ryan’s Story
Ryan, 12, has mitochondrial disorder and eosinophilic esophagitis. With the help of specialists, he’s able to attend classes at school.
Down Syndrome and Heart Disease: Hazel's Story
Hazel is now a high-spirited toddler, a sharp contrast to the early-term baby who was born with Down syndrome and a congenital heart defect.
Thriving With Down Syndrome: Emilio's Story
Born with Down syndrome, Emilio's breakthrough happened when he learned to write his name, count to 10, and draw "some really neat pictures at school.”
Jeune Syndrome and VEPTR Surgery: Isla’s Story
James and Rachel traveled 3,000 miles to seek medical treatment for their daughter's TIS. CHOP is one of only a few hospitals in the nation that offer VEPTR surgery.
Autosomal Recessive Polycystic Kidney Disease: Gideon’s Story
Gideon received a kidney transplant at Children’s Hospital of Philadelphia, with his father as a donor. Today, he is an active 3-year-old.
Cardiac Tumor and Stroke: John's Story
When John, 15, passed out at football practice, CHOP doctors discovered he had a stroke and a rare cardiac tumor. After treatment, John is doing well.
Undiagnosed Reflux and Immune Reactions: Leonardo’s Story
The Integrative Health Program has helped Leonardo manage his mysterious illness with a gluten-free diet and holistic approach.
Josephine’s Chronic Lung Disease Story
A multidisciplinary team at Children’s Hospital of Philadelphia helped Josephine conquer complex medical needs from severe infant chronic lung disease.
Heart Transplant: Kylee's Story
Kylee is a happy and healthy 5-year-old girl thanks in large part to a heart transplant at Children’s Hospital of Philadelphia.
Legg-Calvé-Perthes disease: Daniel’s story
Once in so much pain he couldn’t walk, Daniel is back on the field competing in tournament baseball, sometimes two or three games in a single day.