Our patients' stories
Selective dorsal rhizotomy surgery for cerebral palsy: Laurel's story
When spasticity from cerebral palsy made it difficult for Laurel to move, her family turned to CHOP for a life-changing surgical procedure.
Seizures, Cerebral Palsy & Congenital Hydrocephalus: Evan's Story
This holiday season is extra special to Evan's mom: her 7-year-old survived a life-threatening medical emergency and is now home with his family.
Goldenhar Syndrome: Emily’s Story
Born with tetralogy of Fallot and Goldenhar syndrome, Emily has endured dozens of surgeries in the past 14 years, and her mission is to teach kindness and acceptance.
IgE-Mediated Food Allergies: John's Story
John lived with food allergies for years until a novel allergy treatment at Children's Hospital of Philadelphia desensitized him to his triggers: milk and peanuts.
Cystic Fibrosis & Reflux: Chad’s Story
Thanks to the team at the Cystic Fibrosis Center, 10-year-old Chad is spending less time in the hospital – and more time doing what he loves.
Double Inlet Left Ventricle and Interrupted Aortic Arch: Hailee's Story
After staged reconstructive heart surgery as a baby, doctors discovered Hailee's heart was beating too slowly and implanted a pacemaker to steady the rhythm.
Hypoplastic Left Heart Syndrome: Siena's Story
Born with multiple ventricular septal heart defects, Siena overcame many challenges during her first year. Now 14 months old, she's back home and reaching new milestones.
Dilated Cardiomyopathy and Heart Failure: Naadir's Story
Naadir, 13, is recovering successfully from a heart transplant after four months on a ventricular assist device implanted at Children's Hospital of Philadelphia.
Dextrocardia and Heart Transplant: Matthew's Story
Born with a backward heart on the wrong side of his chest, Matthew received a heart transplant and is now thriving.
Lessons Learned: Patrick’s Adult CHD Story
As an adult living with congenital heart disease and an implanted heart monitor, Patrick uses his life and health experiences to influence his students' futures.
Congenital Adrenal Hyperplasia: Charlotte and Michael’s Story
The expert care provided at CHOP’s Adrenal and Puberty Center for children with congenital adrenal hyperplasia is well worth the long drive for the Bair family.
Severe Infantile Scoliosis and Rib Fusion: Jonathen’s Story
An innovative device, developed by one of CHOP’s world-renowned surgeons, gave Jonathen’s family hope for a better future.
An Augmentative and Alternative Communication System Helps His Personality Shine Through: Justin’s Story
CHOP speech-language pathologists help Justin find the augmentative and alternative communication system that’s right for him, right now.
Beckwith-Wiedemann Syndrome: Alivya’s Story
Alivya traveled to CHOP from her home in Indiana to receive treatment for Beckwith-Wiedemann syndrome. Today, she’s home — and smiling.
Eosinophilic Esophagitis: Sam's Story
A novel clinical study at CHOP has made 8-year-old Sam asymptomatic for eosinophilic esophagitis after he was diagnosed as a baby.
Turner Syndrome Second Opinion: Carlin’s Story
Carlin, 12, has Turner syndrome. She has been receiving comprehensive care and a network for support and training at Children’s Hospital of Philadelphia.
Congenital Diaphragmatic Hernia: Gage’s Story
Born with CDH, Gage made a full recovery after surgery at CHOP. To help others, his family is participating in research about long-term outcomes for CDH.
Nephrotic Syndrome: Denim’s Story
After being treated for nephrotic syndrome, Denim has turned the challenges of managing a chronic kidney disease into an opportunity to help others.
Hypoplastic Left Heart Syndrome and Heart Transplant: Hudson's Story
Born with heart disease and later developing heart failure, Hudson needed a heart transplant. Today, the 5-year-old is running circles around his parents.
Epidermolysis Bullosa: Wilbert’s Story
Wilbert sees a multidisciplinary team at CHOP for treatment of epidermolysis bullosa (EB), a rare genetic skin disease that causes painful blistering.