Skip to main content

Patient Stories

Our patients' stories

Patient story

Goldenhar Syndrome: Emily’s Story

Born with tetralogy of Fallot and Goldenhar syndrome, Emily has endured dozens of surgeries in the past 14 years, and her mission is to teach kindness and acceptance.

Patient story

IgE-Mediated Food Allergies: John's Story

John lived with food allergies for years until a novel allergy treatment at Children's Hospital of Philadelphia desensitized him to his triggers: milk and peanuts.

Patient story

Hypoplastic Left Heart Syndrome: Siena's Story

Born with multiple ventricular septal heart defects, Siena overcame many challenges during her first year. Now 14 months old, she's back home and reaching new milestones.

Patient story

Lessons Learned: Patrick’s Adult CHD Story

As an adult living with congenital heart disease and an implanted heart monitor, Patrick uses his life and health experiences to influence his students' futures.

Patient story

Nephrotic Syndrome: Denim’s Story

After being treated for nephrotic syndrome, Denim has turned the challenges of managing a chronic kidney disease into an opportunity to help others.

Patient story

Epidermolysis Bullosa: Wilbert’s Story

Wilbert sees a multidisciplinary team at CHOP for treatment of epidermolysis bullosa (EB), a rare genetic skin disease that causes painful blistering.

Jump back to top