Our patients' stories
IgE-mediated Food Allergies: Danielle's Story
Danielle's food allergies are no longer life-threatening thanks to innovative treatment at CHOP.
Inflammatory Bowel Disease (IBD): Max's Story
Infusions have been a game-changer for Max, 12, to treat his Crohn’s disease. As a result, he hasn’t had a flare-up in more than a year.
Nephrotic Syndrome: Nick’s Story
Nick, 12, is treated for nephrotic syndrome at the Division of Nephrology at Children’s Hospital of Philadelphia. He takes ownership of his health.
Medical Management of Chronic Kidney Disease: Alixandria's Story
Alixandria’s abnormal levels of hemoglobin and iron were a mystery until a kidney biopsy at Children’s Hospital of Philadelphia revealed chronic kidney disease.
Down Syndrome and Humanized CAR T-cell Therapy for Relapsed Acute Lymphoblastic Leukemia: Steven’s Story
Chemo is tough on cancer patients with Down syndrome like Steven, so when his leukemia came back, he traveled to CHOP for an experimental cell therapy.
Lifesaving Surgery for Congenital Cystic Adenomatoid Malformation (CCAM): Adison’s Story
Kathleen’s decision to travel from Florida to deliver her son in Philadelphia turned out to be a lifesaver when the cysts inside his CCAM ruptured at birth.
Teagan Joy's Story: Palliative Care for Skeletal Dysplasia
CHOP’s Perinatal Palliative Care and Bereavement team helped Shannon and Jason find joy during a time of grief as they prepared to say goodbye to their baby.
IgE-mediated Food Allergies: Emerson & Kenny's Story
Brothers Emerson and Kenny share the same food allergies, but receive different customized treatments at Children's Hospital of Philadelphia.
Peritoneal Dialysis for Chronic Kidney Disease: Mason’s Story
Mason was suffering from kidney failure and severe hypertension. Now he is growing and developing as he receives dialysis while awaiting a kidney transplant.
Congenital Chylothorax and Lymphatic Embolization: Austin's Story
Diagnosed with a lymphatic leak before he was born, Austin is thriving today thanks to innovative treatment at Children's Hospital of Philadelphia.
Hyperinsulinism and Post-pancreatectomy Diabetes: Jenny’s Story
A CHOP research study seeks to even out the ups and downs of post-pancreatectomy diabetes. Jenny, who has hyperinsulinism, can’t wait for the results.
Rotationplasty for osteosarcoma: Liam’s story
To remove a cancerous tumor, Liam had a surgical procedure that removed only the middle portion of his leg and let him remain active.
Breakthrough Treatment for Airway Tumors Gives Hannah Her Voice
Thanks to an experimental airway tumor treatment she received at CHOP, Hannah can talk now with her friends — really talk — because all the tumors are gone.
Ketogenic Diet to Control Seizures: Kayla’s Story
With support from CHOP’s Dietary Treatment Program, Kayla is following a modified ketogenic diet and living her busy teenage life seizure-free.
Collaborating to Provide Breakthroughs in Care: Antonio's Story
Eleven years after receiving lifesaving care at CHOP and Pennsylvania Hospital, one N/IICU patient returns to say thank you.
VEPTR Surgery for Jeune Syndrome: Madden's Story
Born with no hope for survival, a specialized team at CHOP helped Madden survive and thrive longer than anyone thought possible.
Living With Congenital Heart Disease: Bonnie’s Story
Bonnie always understood the limitations of her congenital heart disease but, by working with her care team, she never let it define her.
Connor's Spina Bifida Journey
Connor has been in the spotlight since before he was born. Doctors closed a hole in his spine while he was still in his mother's womb. Follow his journey.
VEPTR implants to treat Jarcho-Levin syndrome: Isla’s story
After being told their daughter might not live past age 3, Isla’s parents were determined to look for a glimmer of hope, and they found it at CHOP.
Proton Therapy for Relapsed Craniopharyngioma: Elena's Story
When her benign brain tumor came back, Elena and her family traveled from Ohio to CHOP for 39 rounds of proton therapy.