Our patients' stories
Asthma and Food Allergies Second Opinion: Nora's Story
For years, Nora's family treated her severe asthma and food allergies as separate conditions, but a new biologic therapy at CHOP is improving both.
Responsive Neurostimulation for Epilepsy: AJ’s Story
AJ’s life was relatively uncomplicated until age 14, when he began to experience unpredictable seizures and received a life-changing diagnosis of epilepsy. Thanks to the combination of a small, battery-powered device surgically implanted into his brain and an oral medication, he is now seizure-free.
Encopresis: Brayden's Story
Brayden struggled with severe constipation and encopresis for years before he got treatment to manage his condition at Children's Hospital of Philadelphia.
Rhabdomyosarcoma: Donors Help Power Kaitlyn’s Fight Against Cancer
Kaitlyn lights up the room with her smile and emanates positivity, despite her battle with rhabdomyosarcoma.
Dextrocardia and Heart Transplant: Matthew's Family Is Grateful for the Generosity of Others
Born with a backward heart on the wrong side of his chest, Matthew received a heart transplant and is now thriving.
Juvenile Myelomonocytic Leukemia (JMML): Donor-supported Cancer Research Helps Kaleo Beat Cancer
Kaleo was diagnosed with juvenile myelomonocytic leukemia (JMML), a very rare form of cancer. One year after a bone marrow transplant, Kaleo is cancer-free.
Individualized Medical Genetics: Donor-funded Research Helps Camryn Thrive After Rare Brain Malformations
Genetics experts at Children’s Hospital of Philadelphia have helped Cortney and Ryan identify their daughter’s rare genetic mutation, leading to improved care.
New Gene Therapy for Inherited Blindness: Donor-supported Research Helped Save Hannah’s Sight
Diagnosed with Leber congenital amaurosis as a baby, Hannah was on a path to going blind until gene therapy at Children’s Hospital restored her sight.
IgE-mediated Food Allergies: PJ and Alana's Story
Thanks to oral immunotherapy and the Food Allergy Bravery Clinic at CHOP, siblings PJ and Alana can now eat many of the foods that used to produce severe allergic reactions.
Autism Spectrum Disorder: Celi’s Story
Diagnosed with autism as a toddler, Celi didn’t say her first word until she was 4. Today, at 14, she loves making art — and performing standup comedy.
Graves' Disease in a Young Boy: Kade's story
Graves’ disease in young boys is rare. But that was the diagnosis for Kade, whose hyperthyroidism caused him to act out, and led his parents to seek treatment at CHOP.
VEPTR Surgery for Skeletal Dysplasia: Grace's Story
A lifesaving treatment at CHOP gave Grace a chance at life, and her family hope for a future with their daughter.
IgA Nephropathy: Todd's Story
After being diagnosed with a rare kidney disease, Todd received care at Children’s Hospital of Philadelphia’s Specialty Care and Surgery Center in Voorhees.
Brain Surgery for Epilepsy: Emily's Story
State-of-the-art brain surgery at CHOP reduced Emily’s seizures from 90 per day to zero — it's been life changing for her and her family.
Gastroparesis: Akil's Story
After severe GI symptoms hospitalized 13-year-old Akil, motility experts at CHOP diagnosed him and developed an individualized treatment plan.
Protein-induced Enterocolitis Syndrome: Alivia's Story
Alivia wasn't even a year old when she was diagnosed with FPIES, a rare food allergy. With treatment and monitoring, she's now a healthy toddler.
Crohn's Disease: Gabriella's Story
Gabriella’s IBD symptoms went from bad to worse, that’s when her family took her to CHOP. Today, she’s an energetic 10-year-old who enjoys sports.
Sudden Cardiac Arrest: Maeve's Story
Maeve was at softball practice when her heart stopped. Thanks to immediate care and world-class treatment at CHOP, the teen is back on the ballfield and doing great.
Food Protein-induced Enterocolitis Syndrome: Dean's Story
Diagnosed with food protein-induced enterocolitis syndrome (FPIES) as an infant, Dean received personalized treatment at CHOP and is now thriving.
Inflammatory Bowel Disease (IBD): Garrett
After his IBD diagnosis, Garrett couldn’t be far from a bathroom after eating. Now, he eats nonstop — his favorite food is chocolate and vanilla swirl ice cream.