Our patients' stories

New Oral Immunotherapy Treatment for Peanut Allergy: Noah's Story
With help from a new FDA-approved oral immunotherapy (OIT) treatment, Noah can now experience life without fear of adverse reactions from peanut protein.

Hypoplastic Left Heart Syndrome: Michael's Story
Michael, 5, is meeting all his developmental milestones after surgeries for a severe heart defect. He was closely monitored by the Cardiac Kids Developmental Follow-up Program at CHOP.

Surgical correction of macrodactyly: Phoebe's story
A combination of surgical procedures corrected Phoebe’s macrodactyly, an uncommon condition that causes irregular growth in a child's fingers or toes.

Acute Lymphoblastic Leukemia: Jack’s Story
After Jack was diagnosed with cancer, his family was impressed how everyone at CHOP, from the check-in team to the world-class doctors, made them feel special.

Chronic Intestinal Pseudo-obstruction: Hannah’s Story
Hannah is determined not to let having chronic intestinal pseudo-obstruction – or the colostomy pouch she must wear — keep her from a future in nursing.

Burkitt Lymphoma: Lucas’ Story
A rare, fast-growing cancer was clogging the drainage system in Lucas’ body. After a short, intense round of treatment, he’s set to play soccer in the fall.

T-cell Acute Lymphoblastic Leukemia: Michael’s Story
Chemotherapy damaged the bone tissue in Michael’s legs, requiring surgery and the use of a wheelchair for several months.

Relapsed T-cell acute lymphoblastic leukemia: Mia’s Story
Five-year-old Mia has spent a great amount of time isolated because of her weakened immune system. Now she can’t wait to ride roller coasters.

Hodgkin Lymphoma: Nicholas’ Story
After Nicholas, 14, received a diagnosis of Hodgkin lymphoma, his care team supported the entire family’s well being in every possible way.

Relapsed Acute Lymphoblastic Leukemia: Thomas’ Story
When Thomas was 2 and being treated for leukemia, he was terrified. When the cancer returned, he faced it bravely.

Lauren’s Story: Uncovering the Genes that Cause Epilepsy
Lauren, who was named Miss Wheelchair New York 2020, is participating in research at CHOP for a rare form of epilepsy

Severe Congenital Neutropenia: Emma’s Story
Emma’s bone marrow wasn’t producing what her body needed to fight infections. A bone marrow transplant transformed her life.
Medical Legal Partnership: Caleb’s Story
Caleb depends on electricity to run his ventilator, suction machine and feeding tube. CHOP’s Medical Legal Partnership helped his family keep the utilities on so now Caleb can focus on other things — like preparing for kindergarten.

Peanut Allergy: Addison's Story
Addison’s peanut allergy has improved greatly thanks to a promising new treatment at CHOP. The 12-year-old has shown her thanks by raising money to help more kids like her.

Mitochondrial Disease: Dakota’s Story
Facing a tough diagnosis together, CHOP doctors offer Dakota hope and support, while she helps them learn more about her rare mitochondrial disease.
Video: A Heart for Hudson
Born with a severe heart defect, Hudson experienced a harrowing journey before he had a heart transplant at Children's Hospital of Philadelphia.

Complications After Premature Birth: Lincoln's Story
In just two years of life, Lincoln has spent more than 5 months in the hospital overcoming premature birth, brain injury, multiple surgeries and near-death experiences.

Izahd’s Story: Hand Surgery for Brachial Plexus
When Izahd had hand surgery for brachial plexus, his family was consistently impressed by the care their son received at Children’s Hospital of Philadelphia. Each stage in their journey inspired them to give back.

Treatment for Recurrent Pancreatitis and Choledochal Cysts: Autumn's Story
Children's Hospital of Philadelphia (CHOP) doctors unraveled the clues to find the answer to Autumn’s severe stomach pain caused by recurrent pancreatitis: bile duct surgery to treat a choledochal cyst.

Hyperinsulinism/hyperammonemia Syndrome: Adam’s Story
Adam’s hyperinsulinism/hyperammonemia wasn’t well controlled until he came from Chicago to CHOP. Now he’s participating in research to help find a better treatment for HA.