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Patient Stories

Our patients' stories

Patient story

Stephanos’ Story

Stephanos was diagnosed with a congenital heart defect in utero and had three surgeries before he turned 3. Thanks to the Fetal Heart Program at Children’s Hospital of Philadelphia, Stephanos is now a 6-year-old who loves Legos and sports, and swings a mean golf club.

Patient story

Neuroendocrine Tumor: Peyton’s Story

After being diagnosed with a rare type of tumor in her airway, Peyton came to CHOP for surgery that successfully saved part of her right lung.

Patient story

Pfeiffer Syndrome: Ryley’s Story

Nine-year-old Ryley has remained sassy and strong while undergoing 40-plus procedures to repair her differences of the skull and face.

Patient story

Lifesaving Care for HLHS: Thomas’ Story

Born with hypoplastic left heart syndrome, Thomas had a 50% chance of making it to his first reconstructive heart surgery. CHOP helped him beat those odds.

Patient story

Healthy Weight Program: Londyn's Story

The medication to calm Londyn’s asthma caused steady weight gain. Now a patient of CHOP’s Healthy Weight Program, the 12-year-old found a passion for exercise. 

Patient story

Addison’s disease: Chase’s story

Before CHOP’s diagnosis and treatment for adrenal insufficiency, Chase struggled with low energy. Now he dreams of coaching pro football

Patient story

Alexandria’s Story: Burr Hole Hemispherotomy for Seizures Caused By Perinatal Stroke

Alexandria was born at Pennsylvania Hospital, the nation’s first hospital, located in downtown Philadelphia. Everything seemed fine just after her C-section delivery, but within 24 hours of her birth, her mother, Kacy, noticed Alexandria’s eye twitching. She pointed it out to a nurse who brought in a neonatologist to evaluate the newborn. The neonatologist said the twitch was, in fact, a seizure.

Patient story

Synovial Sarcoma: Callan’s Story

Many oncology programs declared Callan’s rare tumor, located in his chest, inoperable. CHOP offered a comprehensive treatment plan that successfully removed the tumor.

Patient story

Anna’s Story: Playing a Role in Research Advances for Friedreich’s Ataxia

Since their first experience at CHOP in 2015, Anna’s parents have felt welcomed and supported by the team in CHOP’s Friedreich’s Ataxia Program. Team members go out of their way to make their daughter feel comfortable and cared for, and they have a sincere commitment to providing care that takes the whole child into account.

Patient story

Aaron’s Story: Surgery, Chemotherapy and Stem Cell Transplant for Medulloblastoma

When Aaron was 4, he was suddenly diagnosed with a brain tumor and had to undergo seven months of arduous treatment. His family will never forget the teams in neurosurgery, oncology, nursing and child life — and the Phillies and their South Jersey community — all of whom lifted Aaron up throughout his journey at CHOP.

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