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Patient Stories

Our patients' stories

Patient story

Pajama Day Spotlight: Groveland Elementary School

For the students and staff at Groveland Elementary School in Doylestown, Pa., participating in Children’s Hospital of Philadelphia’s annual Pajama Day fundraiser every year is not only a chance to be extra cozy at school, it’s also an opportunity to support a cause near and dear to their hearts.

Patient story

Life After Neuroblastoma: Ruby's Story

After twice overcoming cancer as a young child, Ruby is thriving in college, playing wheelchair basketball and planning for her future.

Patient story

CDKL5 Deficiency Disorder: Avery's Story

Avery, 6, has been treated at Children’s Hospital of Philadelphia (CHOP) for seizures since she was a baby. She is one of the first patients to benefit from CHOP’s new multidisciplinary CDKL5 Clinic.

Patient story

Heart Transplant: Tenlee's Story

Tenlee was 3 days old when her family learned reconstructive surgery wouldn't be enough to save her life — she needed a new heart.

Patient story

Patent Ductus Arteriosus: Zylah’s Story

Before Zylah was even born, she received a miraculous birthday gift. It wasn’t a frilly dress or a pretty doll, but a heart procedure developed for extremely premature babies, just like her.

Patient story

Morgan’s story: Bilateral hip surgery

When Morgan was 11, longstanding hip issues began to severely limit her mobility and ability to play her favorite sport, soccer. Here, she describes the experience in her own words.

Patient story

Celiac Disease: Weston’s Story

Learn how the Center for Celiac Disease at Children’s Hospital of Philadelphia helped this family change their diets and get their son well.

Patient story

Beta Thalassemia Major: Mia’s Story

From the time she was just a few months old, Mia needed blood transfusions due to her rare blood disease. A bone marrow transplant changed everything.

Patient story

Emma’s Story: Bracing for Scoliosis

A case of pneumonia led to the discovery that Emma had scoliosis. Diligence in adhering to her bracing treatment plan produced an amazing outcome.

Patient story

Donor Profile: The Magical Mila Foundation

Mila didn’t survive surgery for complications of her rare genetic disease, which also caused extremely high blood pressure. Her parents are determined to find new options.

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