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Patient Stories

Our patients' stories

Patient story

Mitochondrial Disease: Ignacio's Story

Ignacio has been a healthy and active kid since he received a liver transplant at CHOP when he was two months old, part of his treatment for a rare form of mitochondrial disease.

Patient story

Food Allergies: Grace's Story

Plagued with food allergies for years, 12-year-old Grace can now eat almost anything thanks to a breakthrough oral immunotherapy program at CHOP.

Patient story

Pajama Day Spotlight: Groveland Elementary School

For the students and staff at Groveland Elementary School in Doylestown, Pa., participating in Children’s Hospital of Philadelphia’s annual Pajama Day fundraiser every year is not only a chance to be extra cozy at school, it’s also an opportunity to support a cause near and dear to their hearts.

Patient story

Life After Neuroblastoma: Ruby's Story

After twice overcoming cancer as a young child, Ruby is thriving in college, playing wheelchair basketball and planning for her future.

Patient story

CDKL5 Deficiency Disorder: Avery's Story

Avery, 6, has been treated at Children’s Hospital of Philadelphia (CHOP) for seizures since she was a baby. She is one of the first patients to benefit from CHOP’s new multidisciplinary CDKL5 Clinic.

Patient story

Heart Transplant: Tenlee's Story

Tenlee was 3 days old when her family learned reconstructive surgery wouldn't be enough to save her life — she needed a new heart.

Patient story

Patent Ductus Arteriosus: Zylah’s Story

Before Zylah was even born, she received a miraculous birthday gift. It wasn’t a frilly dress or a pretty doll, but a heart procedure developed for extremely premature babies, just like her.

Patient story

Morgan’s story: Bilateral hip surgery

When Morgan was 11, longstanding hip issues began to severely limit her mobility and ability to play her favorite sport, soccer. Here, she describes the experience in her own words.

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