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Patient Stories

Our patients' stories

Patient story

Lymphatic Microsurgery: Daniel’s Story

Diagnosed with a rare lymphatic condition called chylothorax, a newborn undergoes life-saving surgery at CHOP’s Center for Lymphatic Disorders.

Patient story

Duchenne Muscular Dystrophy: Cooper’s Story

Cooper was one of the first at CHOP to receive a new FDA-approved infusion therapy for Duchenne muscular dystrophy, which is given to him at home. Results are promising.

Patient story

Hypogammaglobulinemia: Dylan’s Story

Looking for bright spot during COVID-19? Look no further than 7-year-old Dylan, an active 2nd grader who’s had his first infection-free year in his entire life.

Patient story

Creation of Potts Shunt on ECMO: Elias’ Story

When two-year-old Elias was placed on ECMO with severe pulmonary hypertension, his chances of survival were almost nonexistent. CHOP cardiothoracic surgeon Dr. Maeda saved his life through a risky procedure called Potts Shunt.

Patient story

Insulinoma: Leilani’s story

When doctors in Florida struggled to diagnose Leilani’s rare illness, her parents pushed to bring her to Children’s Hospital of Philadelphia, where she was cured.

Patient story

Kabuki Syndrome: Rosalie's Story

Rosalie had been in and out of the hospital a few times at three months old before coming to the Kabuki Syndrome Clinic at CHOP for answers.

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