Our patients' stories
From Cancer to Sepsis and Beyond: Kathryn’s Story
Kathryn has overcome more in her 17 years than most do in a lifetime. Learn how CHOP helped her and her family face each new challenge.
Maddie’s Story: Tracheostomy Surgery for Chronic Lung Disease
Thanks to care from CHOP’s Newborn and Infant Chronic Lung Disease (NeoCLD) Program and a new, catheter-based surgery to close her congenital heart defect, Maddie is home and makes developmental gains every day.
Morgan’s Story: Overcoming Brain Injury After Ischemic Stroke
After just a year of care from CHOP’s Pediatric Stroke Program, 16-year-old Morgan has regained her ability to speak and is back to doing the sports she loves.
Pseudotumor Cerebri Syndrome: Lily’s Story
With pseudotumor cerebri syndrome, the symptoms are real even though the tumor is not. Lily relied on her CHOP doctors and her own perseverance to combat the condition.
Leigh Syndrome: A Family’s Quest for Answers
When CHOP discovered the genetic mutation that caused two boys’ early deaths, their family donated $2 million to CHOP to propel mitochondrial disease research even further.
CHOP’s First Ozaki Procedure: Sam’s Story
A young athlete’s love of sports is derailed by valve disease, until an innovative procedure gets him back in his game.
Lymphatic Microsurgery: Daniel’s Story
Diagnosed with a rare lymphatic condition called chylothorax, a newborn undergoes life-saving surgery at CHOP’s Center for Lymphatic Disorders.
Duchenne Muscular Dystrophy: Cooper’s Story
Cooper was one of the first at CHOP to receive a new FDA-approved infusion therapy for Duchenne muscular dystrophy, which is given to him at home. Results are promising.
A Game-Changer for When a Fever Can Be Life-Threatening
Whenever a cancer patient like Max gets a fever, it’s an emergency. CHOP’s new hospital in King of Prussia will mean a closer ER for these frightening moments.
Overcoming Feeding Issues from Congenital Diaphragmatic Hernia: Maggie’s Story
Born with a hole in her diaphragm (congenital diaphragmatic hernia), feeding difficulties were one of the biggest hurdles little Maggie has had to face in her CDH journey.
Hypogammaglobulinemia: Dylan’s Story
Looking for bright spot during COVID-19? Look no further than 7-year-old Dylan, an active 2nd grader who’s had his first infection-free year in his entire life.
Ewing Sarcoma and Growth Hormone Deficiency: Vanessa’s Story
A tumor in the bones around her eye robbed Vanessa of her vision in one eye, but she showed strength and resilience dealing with treatment and long-term side effects.
Bone Marrow Transplant for Sickle Cell Disease: Asher’s Story
For years, sickle cell disease caused frequent pain crises and hospitalizations for Asher. A curative therapy has eliminated those harrowing experiences.
Bone Marrow Transplant for Sickle Cell Disease: Dallas’ Story
Sickle cell disease brings constant fear of life-threatening complications. A successful bone marrow transplant ended those fears for Dallas and her family.
ACL reconstruction and meniscus repair: Dean’s story
When Dean tore his ACL and meniscus in a soccer game, CHOP’s Sports Medicine team expertly repaired the damage so he could return to the sport he loves.
Bone Marrow Transplant to Treat Hurler Syndrome: Josie’s Story
18-month-old Josie received a stem cell transplant to stop a rare and devastating genetic condition in its tracks.
Experimental Gene Therapy for Beta Thalassemia: Aliya’s Story
For the first 30 years of her life, Aliya needed monthly blood transfusions for her inherited blood disorder. A gene therapy changed everything.
Creation of Potts Shunt on ECMO: Elias’ Story
When two-year-old Elias was placed on ECMO with severe pulmonary hypertension, his chances of survival were almost nonexistent. CHOP cardiothoracic surgeon Dr. Maeda saved his life through a risky procedure called Potts Shunt.
Spinal fusion during COVID-19: Shane’s story
When Shane’s spinal curve dramatically worsened, his CHOP orthopedic team knew it was time to act. Then COVID-19 happened. Follow his spine surgery journey.
Bilateral Nephrectomies for Wilms Tumors: Raritan’s Story
With cancerous tumors in both kidneys, Raritan’s care team from Oncology, Urology and Radiation collaborated to successfully remove them through a specialized surgical technique.