Our patients' stories

Creating access to world-class orthopedic specialists for kids like Jackie
At 18 months old, Jackie needed hip surgery. CHOP’s new hospital will give families like hers easier access to CHOP’s world-class orthopedic experts.

Sophia’s Story: Fetal Surgery to Remove a Sacrococcygeal Teratoma
Before she was born, Sophia underwent successful surgery at Children's Hospital of Philadelphia to remove a tumor called a sacrococcygeal teratoma from her tailbone. See how she's doing now.

From Sudden Cardiac Arrest to AED Advocate: Maddie’s Story
When 17-year-old Maddie collapsed on the school athletic field, a quick-thinking staff member saved her life with an AED. Now she’s determined to save others.

Biliary Atresia and Alpha-1 Antitrypsin Deficiency: Elliott’s Story
After being diagnosed and treated for a genetic disorder, Elliott’s troubling GI symptoms continued – leading CHOP doctors to discover he also had biliary atresia.

Congenital Cystic Adenomatoid Malformation (CCAM) Surgery: Owen’s Story
The fetal medicine team at Children’s Hospital of Philadelphia made a treatment plan for his CCAM/CPAM, and Owen is now home and happy after surgery.

Maxwell’s Story: Postnatal Repair and Care for Congenital Diaphragmatic Hernia
Chris and Jolin traveled from their home in Pensacola, Florida to Children’s Hospital of Philadelphia to give their son, Max, access to world-class CDH care.
Fetoscopic Endoluminal Tracheal Occlusion Offers Hope for Prenatally Diagnosed Cases of Severe Congenital Diaphragmatic Hernia
CDH can be a devastating diagnosis for an expecting parent to receive. But for a select group of babies with the most severe form of CDH, treatment before birth may help.

Aortic Dissection: Joslyn’s Story
A genetic connective tissue disorder leads to multiple aortic aneurysms and life-threatening dissection in an 11-year-old.

Elite Athlete Injuries: Maia’s Story
Supported by CHOP over the years, Maia, 18, is hoping to join the U.S. Olympic fencing team to compete in the Summer Olympics.

Gavin’s Story: Spine Surgery to Correct a Deformity Caused By a Rare Genetic Neuromuscular Disorder
When Gavin was born, doctors didn’t expect him to survive, but thanks to a large team of specialists and a coordinated spine surgery, he’s defying the odds.

Thomas’s Story: Prenatal Diagnosis and Postnatal Surgical Repair of Encephalocele
One family shares their experience for parents who learn their child has a severe diagnosis before birth

Cricotracheal Resection for Subglottic Stenosis: Zakary’s Story
The team at the Center for Pediatric Airway Disorders gave Zakary what he’d never before had: a fully functioning airway.

Unilateral Hearing Loss and Cochlear Implant: Abby’s Story
Spontaneous total hearing loss in one ear turned out to be only a bump in the road — not an end of dreams — for Abby, who had a cochlear implant at CHOP at 17.

New Genetic Condition Identified: Luke’s Story
Luke’s repeated infections worried his parents and puzzled his doctors. Whole-exome sequencing helped CHOP researchers discover a new genetic disease causing his symptoms and determine the best course of treatment.

From Cancer to Sepsis and Beyond: Kathryn’s Story
Kathryn has overcome more in her 17 years than most do in a lifetime. Learn how CHOP helped her and her family face each new challenge.

Maddie’s Story: Tracheostomy Surgery for Chronic Lung Disease
Thanks to care from CHOP’s Newborn and Infant Chronic Lung Disease (NeoCLD) Program and a new, catheter-based surgery to close her congenital heart defect, Maddie is home and makes developmental gains every day.

Morgan’s Story: Overcoming Brain Injury After Ischemic Stroke
After just a year of care from CHOP’s Pediatric Stroke Program, 16-year-old Morgan has regained her ability to speak and is back to doing the sports she loves.
Pseudotumor Cerebri Syndrome: Lily’s Story
With pseudotumor cerebri syndrome, the symptoms are real even though the tumor is not. Lily relied on her CHOP doctors and her own perseverance to combat the condition.

Leigh Syndrome: A Family’s Quest for Answers
When CHOP discovered the genetic mutation that caused two boys’ early deaths, their family donated $2 million to CHOP to propel mitochondrial disease research even further.

CHOP’s First Ozaki Procedure: Sam’s Story
A young athlete’s love of sports is derailed by valve disease, until an innovative procedure gets him back in his game.