Our patients' stories
Severe Asthma: Onni’s Story
With her severe asthma under control — with help from CHOP’s PAPA Clinic — Onni is in school, out of the hospital and “a whole new kid.”
Learning to Grieve: Joseph “Joey” Nolan’s Story
Support from CHOP’s palliative care and bereavement specialists helped Joey’s family through the heartbreaking experience of losing a child and brother.
New Onset Nephrotic Syndrome: Nolan’s Story
3 year old Nolan’s leg pain and swelling of his eyes and stomach led to a diagnosis of nephrotic syndrome, now managed by immunosuppression.
Medical Management of Rett Syndrome: Clare’s Story
The knowledge and support they have received from their care team at CHOP has helped Clare’s parents manage her progressive neurodevelopmental disorder.
Kidney Transplant for Prune Belly Syndrome: Jaxon’s Story
Five-year-old Jaxon is playing soccer and baseball for the first time after a successful kidney transplant surgery on Christmas Day 2020.
Heart Defect and Down Syndrome: Anthony’s Long Road Home
Born with a heart defect and Down syndrome, Anthony needed immediate treatment for his cardiac issue before his developmental condition could be addressed.
A Game-changer for Kidney Stones: Chloe’s Story
Innovative care for Chloe’s kidney stones is closer than ever at CHOP’s new hospital in King of Prussia.
A Pediatric E.R. That’s Easier to Reach When Mysterious Symptoms Arise
Evan’s fevers and arm pain required emergency evaluation. With CHOP’s new KOP hospital now open, families like his can reach a E.R. much faster.
Prenatal Diagnosis of Hydrocephalus and Postnatal Shunt Surgery: Laurel’s Story
When Laurel was diagnosed with hydrocephalus while she was still in the womb, her parents turned to the best team to give their daughter the best chance in life.
Neurofibromatosis Type 1: Conor’s story
Conor, 16, and his parents have been traveling to CHOP from South Carolina several times a year since he was an infant for NF1 treatment and clinical trials.
Neurofibromatosis 1: Carlee’s Story
Carlee, 4, receives treatment for the optic pathway tumor that caused vision loss. But she’s also gotten extensive psycho-social support.
Voice Loss and Acid Reflux: Kate’s Story
Kate loves to sing. In a scare when she was 16, she experienced bouts of losing her voice. The Pediatric Voice Program at CHOP helped her get her voice, and her dreams, back.
Acute Lymphoblastic Leukemia: Sloane’s Story
A rash that appeared as a few tiny purple spots on Sloane’s arms and legs signaled to her parents, Lyndsay and Jon, that something might be wrong, even though the little girl was not showing signs of being sick in any way.
Burkitt Lymphoma: Ayush’s Story
A week before his seventh birthday, Ayush was woken up from sleep by an excruciating headache. When he talked, his speech was slurred. His parents, Reshama and Amol, are both physicians, and when they were in medical school, did pediatrics rotations at Children’s Hospital of Philadelphia (CHOP).
Ewing sarcoma: Jacob’s story
When Jacob was 11, he began experiencing intermittent pain in his right leg. Since the pain came and went, he continued playing sports, but the pain worsened, and one night, it was so bad that it woke him up from his sleep.
Michael’s Story: Medical Management and Follow-Up After Perinatal Stroke
Brett and Jennifer will never forget the relief that came over them when paramedics arrived to transport their newborn son, Michael, to Children’s Hospital of Philadelphia.
Food Allergies and OIT: Rani’s Story
Oral immunotherapy helps 12-year-old Rani achieve new-found freedom and confidence from multiple food allergies that have plagued her since infancy.
Lung Transplant: Leah’s Story
Born with a rare lung disorder, Leah is one of the youngest patients to go from a heart-lung bypass machine to successful lung transplant.
The Beauty of Different: Sasha’s Story
From gracing a magazine cover to writing for one, this former Fetal Heart Program patient aims to shake up the beauty industry and its view of scars.
Neuromuscular Scoliosis and MAGEC Growing Rods: Eli’s Story
A decade after Eli’s rare neuromuscular condition was first diagnosed at CHOP, he returned for successful surgical treatment during a global pandemic.