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Patient Stories

Our patients' stories

Patient story

Severe Asthma: Onni’s Story

With her severe asthma under control — with help from CHOP’s PAPA Clinic — Onni is in school, out of the hospital and “a whole new kid.”

Patient story

Neurofibromatosis Type 1: Conor’s story

Conor, 16, and his parents have been traveling to CHOP from South Carolina several times a year since he was an infant for NF1 treatment and clinical trials.

Patient story

Neurofibromatosis 1: Carlee’s Story

Carlee, 4, receives treatment for the optic pathway tumor that caused vision loss. But she’s also gotten extensive psycho-social support.

Patient story

Voice Loss and Acid Reflux: Kate’s Story

Kate loves to sing. In a scare when she was 16, she experienced bouts of losing her voice. The Pediatric Voice Program at CHOP helped her get her voice, and her dreams, back.

Patient story

Acute Lymphoblastic Leukemia: Sloane’s Story

A rash that appeared as a few tiny purple spots on Sloane’s arms and legs signaled to her parents, Lyndsay and Jon, that something might be wrong, even though the little girl was not showing signs of being sick in any way.

Patient story

Burkitt Lymphoma: Ayush’s Story

A week before his seventh birthday, Ayush was woken up from sleep by an excruciating headache. When he talked, his speech was slurred. His parents, Reshama and Amol, are both physicians, and when they were in medical school, did pediatrics rotations at Children’s Hospital of Philadelphia (CHOP).

Patient story

Ewing sarcoma: Jacob’s story

When Jacob was 11, he began experiencing intermittent pain in his right leg. Since the pain came and went, he continued playing sports, but the pain worsened, and one night, it was so bad that it woke him up from his sleep.

Patient story

Food Allergies and OIT: Rani’s Story

Oral immunotherapy helps 12-year-old Rani achieve new-found freedom and confidence from multiple food allergies that have plagued her since infancy.

Patient story

Lung Transplant: Leah’s Story

Born with a rare lung disorder, Leah is one of the youngest patients to go from a heart-lung bypass machine to successful lung transplant.

Patient story

The Beauty of Different: Sasha’s Story

From gracing a magazine cover to writing for one, this former Fetal Heart Program patient aims to shake up the beauty industry and its view of scars.

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