Our patients' stories

Living an Active Lifestyle After Scoliosis Surgery: Kristi’s Story
Scoliosis surgery at Children’s Hospital of Philadelphia allowed Kristi to keep up her active lifestyle in ways she never thought possible.

The Story of Addy and Lily: Birth and Separation of Conjoined Twins
It took an incredible team effort by experts at Children’s Hospital of Philadelphia to separate conjoined twins and get them home to Chicago for Christmas.

High-risk Neuroblastoma: Nicholas’s Story
When Nicholas was in the hospital being treated for cancer, watching a construction site outside his window helped keep his spirits up.

Eosinophilic Esophagitis: Princess’ story
Princess has struggled for years with a rare inflammatory condition of the esophagus. Thanks to CHOP, a new medication and family support, she’s now thriving.

Hyperinsulinism and Kabuki syndrome: Amelia’s story
A diagnosis of Kabuki syndrome connected all of Amelia’s symptoms, and CHOP has experts to care for each and every condition.

Omphalocele Discovered During Pregnancy: Grace’s Story
At CHOP, when pediatric surgeons perform postnatal repair of omphalocele, a child’s health and quality of life are both top of mind.

Pulmonary Interstitial Glycogenosis: June’s Story
From Day 1, June was breathing too rapidly. The Rare Lung Diseases Center diagnosed her condition: pulmonary interstitial glycogenosis. June was lucky; her mild case resolved on its own.

Beckwith-Wiedemann Syndrome and Pancreatoblastoma: Kaitlyn’s Story
Kaitlyn, 12, has remained positive through multiple surgeries for the symptoms of a rare genetic disorder and treatment for an associated cancer.

Rumination Syndrome: Alicia’s Story
Teen makes full recovery from rumination syndrome, thanks to CHOP’s guidance and her positive attitude.

Hemispherotomy Brain Surgery to Treat Epilepsy: Colton’s Story
Thanks to the support of his adoptive parents and the relentless commitment of his care team at Children’s Hospital of Philadelphia, 5-year-old Colton has come a long way since suffering traumatic brain injury as a newborn.

Gastroparesis: Catherine’s Story
After years of mysterious GI symptoms, Catherine now has a diagnosis, successful treatment and has started a burgeoning new career as a chef.

Hemispherotomy Surgery to Treat Seizures: Matthew’s Story
Matthew has been through a lot in his young life. Thankfully, between his adoptive parents and his medical team at CHOP, he’s got a great support team in his corner.

Surgical repair of bladder exstrophy: Layden’s story
An experienced multi-institutional surgical team provides an extra level of care for kids like Layden born with bladder exstrophy.

Severe Asthma: Onni’s Story
With her severe asthma under control — with help from CHOP’s PAPA Clinic — Onni is in school, out of the hospital and “a whole new kid.”

Learning to Grieve: Joseph “Joey” Nolan’s Story
Support from CHOP’s palliative care and bereavement specialists helped Joey’s family through the heartbreaking experience of losing a child and brother.

New Onset Nephrotic Syndrome: Nolan’s Story
3 year old Nolan’s leg pain and swelling of his eyes and stomach led to a diagnosis of nephrotic syndrome, now managed by immunosuppression.

Medical Management of Rett Syndrome: Clare’s Story
The knowledge and support they have received from their care team at CHOP has helped Clare’s parents manage her progressive neurodevelopmental disorder.

Kidney Transplant for Prune Belly Syndrome: Jaxon’s Story
Five-year-old Jaxon is playing soccer and baseball for the first time after a successful kidney transplant surgery on Christmas Day 2020.

Heart Defect and Down Syndrome: Anthony’s Long Road Home
Born with a heart defect and Down syndrome, Anthony needed immediate treatment for his cardiac issue before his developmental condition could be addressed.

A Game-changer for Kidney Stones: Chloe’s Story
Innovative care for Chloe’s kidney stones is closer than ever at CHOP’s new hospital in King of Prussia.