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Children’s Hospital of Philadelphia Receives $10 Million Grant from the Gilbert Family Foundation to Accelerate Neurofibromatosis Research
Children’s Hospital of Philadelphia (CHOP) today announced that it has received more than $10 million in a series of gifts to fund critical neurofibromatosis research from the Gilbert Family Foundation, a private foundation established by Dan and Jennifer Gilbert to accelerate a cure for neurofibromatosis type 1 (NF1).
Cardiac Center Awards Innovation in Research and Clinical Care
These recently funded projects aim to increase scientific knowledge and advance therapeutics for pediatric heart disease.
CHOP and COG Will Validate New Tool to Measure NF1-Related Progressive Vision Loss
CHOP researchers will use optical coherence tomography (OCT) to measure vision changes associated with NF1-related optic pathway gliomas.
CHOP Participates in a Multi-institutional Clinical Trial Leading to First-Ever Therapy for Neurofibromatosis Type 1
New therapy shrinks tumors associated with NF1 and improves quality of life.

One Year of Performing Assessments of Kids with CHD
In 2018, the Cardiac Kids Developmental Follow-Up Program expanded its services to address the needs of school-age children with a history of cardiac conditions, given their increased risk of learning disabilities and ADHD.
Streamlining Care for Patients with Neurofibromatosis Type 1
The Neurofibromatosis Multidisciplinary Clinic allows patients with NF1 to see three or more specialists in one day, allowing for a seamless flow of appointments from morning until afternoon.