It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.

GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.

The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders.

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.