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Sickle Cell Disease Resources

Our Sickle Cell Disease experts have created this list of resources to help you keep your child safe and well.

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Be the Match Peer Connect Program

The Peer mentors are trained volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. In order to be matched, you fill out the online form that you can get to from the link above and answer questions about what you are looking for in a peer connection, your child’s diagnosis, where you are in the transplant process.

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BMT Infonet Caring Connections Program

Mentors are volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. Their mentors who are caregivers for pediatric patients are limited. To connect, complete an online form at the bottom of the page linked above with demographic information about yourself and the patient.

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Sickle Cell School Outreach

The Sickle Cell Center at CHOP offers comprehensive information for educators on sickle cell disease and how it can affect the school life of children.

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Sickle Cell Support Groups

The Children's Hospital of Philadelphia offers support groups for parents and teens facing the challenges of life with sickle cell disease.

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