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Shwachman-Diamond Syndrome: Elizabeth’s Story
Born with a rare condition affecting her bone marrow, 2-year-old Elizabeth has large care teams at CHOP and her local hospital who coordinate to keep her growing and happy.
Born with a rare condition affecting her bone marrow, 2-year-old Elizabeth has large care teams at CHOP and her local hospital who coordinate to keep her growing and happy.
A very rare condition makes Joyce vulnerable to infections and long-term complications, but she remains wonderfully independent and adventurous.